HER2 Possitive Breast Cancer

Hi everybody... I had a diagnosis of bilateral breast cancer in July. Had a lumpectomy on both breasts  in August. One was a milk duct cancer grade 1 and the other was a HER 2 possitive tumour grade 2.There were no lymph nodes involved. I'm now facing  4 chemo treatments and have had one cycle so far,  alongside 3 weekly injections of Herceptin which I have to have for a year. When the chemo is over there is then 3 weeks of radiotherapy then finally three years of six monthly iv Zometa and at the end of all this there is 5 years of tablets...

Anybody else facing all this treatment? I feel I'm on my own. Its a complete nightmare to me as from the day I felt the lumps to now I've never felt ill... I'm not complaining as I have had perfect care, everyone has been golden, but it doesn't detract from the fact that I read on here and other sites most of you only seem to have radiotherapy... 

  • Hi there ..

    Your def not on your own .. you are going through a tough journey , that's for sure .. and you must feel pretty scared of everything right now.. I had a grade 3 her 2 neg lump ... 

    There are lots of us on here .. if you look on @sandra123 good and bad thread, there's lots of different lasses.. all different stages and treatments ... I know some on there have had chemo and radiotherapy .. some one or the other ... they are the best bunch you could wish for ... 

    They make everyone welcome ... and it shows you other lasses and their journey ... like it says the good and the bad ..  plus happy times too .. l think maybe @jbains had treatment too .. hopefully some will pop by and chat ... but your never alone.. someone will always help you through .. l know twin two has been a big support .. so hold on in there .. here most days if you want a chat ...  Chrissie x

  • [@Dizzle82]‍ has just finished her chemo prior to surgery. 

    She’s also getting married next year!

  • When I got diagnosed I thought the treatment would all be wrapped up pretty quickly. I had no idea some of the treatment could go on for years. My breast surgeon breezily commented that I’d be seeing him for follow ups for 10 years.

    I don’t know my exact treatment plan yet but i was diagnosed with grade 1 multi focal Mucinous cancer, several tumours and 2 lymph nodes affected. I’ve had a mastectomy and lymph node clearance, I’ll probably be having chemo next, definitely having radiotherapy and hormone therapy, which I gather is 5 years minimum of tablets and maybe injections. Or maybe other stuff that blasts my ovaries that I don’t even want to think about yet. It certainly feels like I’m going for the full house in terms of possible treatments. The only thing I’m not getting is herceptin as mine was HER2 negative.

    I never felt ill either and had no symptoms apart from a lumpy area.

    It all feels a bit surreal at times doesn’t it?! X

     

  • Thankyou for replying. Whilst I would not wish cancer on anybody I'm so relieved I'm not on my own. I can't seem to find any info on Her 2 + cancer as it is but this is a big deal to me and your right it seems odd that we are ill when there is no pain and I feel fit and fine... 

  • Thankyou for replying. I guess I need reassurance that I'm not the only one that the Oncologist has opened his cupboard and taken something off each shelf for me. Yes, your right I'm scared but in my mind I keep thinking that at least it was contained and not in the lymph nodes, so with all this treatment hopefully I stand a chance. The Oncologist threw a lot of percentages at me when I learnt my diagnosis, if I did this then this would improve etc that was scary to and it seems when they've built this wall in me I stand a 89% chance it won't come back. I keep thinking what if the 11%. Yes I'm stressed and pleased that I have this forum to express my feelings... Its a shock... 

  • Hi there ...

    Trust me , we are all scared at the start .. and every time we have treatments or wait for results .. 

    It does seem a lot of treatment, when contained ... I was her neg .. so that's the only difference.. and mine was grade 3 .. no lymph node infected as well .. so they said l didn't need chemo, but they offered radiotherapy .. which I refused as I've got really weak bones .. so all I'm doing is tamoxifen .. one tablet a day for 5 years (hopefully) and I made the right decision for me ..

    If I'd been 20 years younger, I would have had anything, when my lads where growing .. but you sound unsure .. if I were you, I'd write down those questions bugging you .. like how much grater are my chances having chemo .. coz I've heard there's not much difference .. and why am I having so much different treatments when you said it was contained and no lymph node infected ..

    I took my daughter in law with me, who wrote everything down .. all the answers .. then I did lots of homework on good sites like this one and McMillan ..  and I was lucky enough to have an amazing surgeon who let me decide for me ... as I told him, I know he deals with cancer every day .. but this is my cancer .. and I want a say in my journey .. and he's been brill ever since .  

    But get those questions answered .. they are the ones that can explain everything .. always here .. whenever you need a chat ..  Chrissie x