WHAT A YEAR

hi everyone,

 Who'd have thought that id be doing Carribean the beginning of the year to cancer the end of it. Four months ago i had a croaky voice, ignored it,it got worse so finally i was taked into see the GP, who immediatly took bloods and arranged to see ENT department at the local hospital. Bloods came back clear, me on a high. Appointment comes through for the hospital had camera up the nose, was told not all cancer showes up in blood tests,stupid me on a downer. Appointment made for biopsy, surgeon comes to see me after says "in his opinion he is 90% certain its not camcer," me back on a high. Results come back its cancer im devistated. STAGE 1:- surgery booked,consultanted says to me before i go under hes confident to remove it i wake up he comes to me and says "sorry he tried but couldnt get to it all so he hasnt removed any" back in the hole i go.

So im back in my GP room as she reads the letter from the hospital and i can clearly see that now im STAGE 2.

ONCOLOGY appointment on Friday (question what happens at the first oncolgy appointment?)

im not usually one for sharing i usually bottle everything up and im close to blow the cork although typing this out is strangely a bit of a comfort. My wife has cried a few times but im tring to be strong for the family.

Anyways thanks for letting me vent on here and i look forward to reading any replies but please i beg you dont say your sorry(you didnt put the tumour there) and the other one is stay positive theres that much positivity sent my way i culd power a light bulb lol

  • Hi guys would like you all to meet my hubby x

    mandy

  • So... croaky voice... are we talking vocal cord cancer ? If so I may be of assistance. I too had the croaky voice. GP sent me straight to ENT. 2 days later day surgery. Informed that the leision removed from vocal cord was benign. After pathology report it was stage 1 cancer. Two weeks later another day surgery, this time lasering of cord. Then a letter for an appointment with oncology team. At this first meeting there was my surgeon, 2 radiotherapy technicians, head of oncology and her main doctor. I was told lasering hadn’t removed all of the cancer cells and was recommended for a 4 week course of RT to ensure these were eliminated. I was informed of all the possible side effects and asked to sign the permission form so this could be started asap. I took the advice of the team and consented. I managed the 4weeks with very little discomfort and, now, 4 months after completion have been told there’s no sign of the cancer. I am now under surveillance for the next 5 years. Your oncology appointment could vary, but will be similar. Important thing to remember is that early stage vocal cord cancer has a 90% cure rate. My advice is take the advice of your medical team and do whatever is necessary to give yourself the maximum chance. Good luck, let us know how you get on at the appointment.

  • Hi Woodstock thank for the reply, yes it is vocal chord cancer, however the surgeon couldnt reach it with the laser. Hopefully your right and it will just be RT however i have been warned that there is a chance of 2 lots of chemo aswell because he didnt remove anything. The tumour i can deal with its just the whole lote of miss information and false hope and the strain on my families emotions. Especially one of our daughters who is hacing a rough pregnancy at the minute and the day I was told it was cancer we came straight out of ENT to go upto maternity to see her(the hardest thing I ever had to do, stand there and smile and tell her everything is ok), I will let you know what happens on Friday. Thanks again it seem easier to chat on here than to speak to peaople face to face.

  • Indeed, we find emotional peaks and troughs we never thought possible when diagnosed with this disease and this makes us hypersensitive. Dealing with other family trauma at the same time must be very hard. Great attitude though, the cancer can be easily cured with some unpleasant moments along the way. I found the NHS amazing despite the fact that my original op removed a “ benign “ leision which later proved malignant. These guys have a massive responsibility and workload, it can’t be easy, they do their best and unfortunately get it wrong : luckily for us the initial “ mistakes “ were promptly corrected. All the best Friday, I await your news.