Hello Wwbc4eva,

I am so sorry to hear your daughter has been diagnosed with this rare tumour. It sounds like it would be good for you to connect with other families who have been affected by this Rhabdoid tumour. I had a little look for you and found this support group which you might be interested in joining. They may have further suggestions for you and as some families may be further along this journey they may be able to answer some of the questions you may have going through your head at the moment.

Our nurses are also a free phone call away if you need to get in touch with them or ask them anything. You can ring them on 0808 800 4040 Monday to Friday from 9am to 5pm.

Best wishes,

Lucie, Cancer Chat Moderator