Hi Shelly

this is probably the worst bit for you - not knowing & waiting! I’m 8 weeks after a radical nephrectomy (removal of my whole left kidney) my mass was cancerous and measured 9.7cm but the consultant believes it was contained within my kidney so couldn’t see any spread in my scans,

Once you know what they plan to do you will feel a little better but it’s the lack of control we have that makes us feel so helpless.

if you’re on Facebook they is a great support group called kidney cancer support network which has lots of people on there that have had surgery, treatment or are waiting for results. I’ve found it a great help and support.

Let us know how you get on with the new consultant xx

Hi sazwats

You are right this is the worst bit, the journey so far has been a nightmare of stress and anxiety which has caused me to go on the sick from work.

How are you feeling now and how long were you in hospital for.

I feel as though there is alsorts I want to ask then when I start typing my mind goes blank.

I've got an appointment for Monday 12th Nov, it was for 19th but a letter arrived to to say it had been brought forward to the 12th so that sent my mind into overdrive.

Thank you for the information with Facebook I will look into that.

I will keep you up to date as to what happens on Monday and thank you for replying.

Take care

Shellyx

I had my op Wednesday morning and left hospital Saturday afternoon.

im doing well - I’m tired quite a lot but my body is working hard repairing itself from the surgery - 9 weeks today o had it done.

how did your appt go on Monday? You have to keep positive and focus on the fact they have found it now and your treatment can begin.

if you need to chat you can message me direct with any questions xxx

Hi everyone supposed to be Jan 19 getting either partial or whole depending what consultant thinks!!

I received letter for pre-assessment on 7th Dec, I thght that seems soon and then next day got the big letter with my admission date for 17th Dec so it's happening but don't know what to think, trying to think normal then will have a moment.

Keep in touch please everyone if you can, and like Dan I will try to keep everyone informed when I have my operation.

Hugs and x

Shelly

Hi Shelly

I just wondered how everything is going? Have you had your op yet?

Sorry I didn’t reply sooner but not been on in a while.

im probably back to 98% health after my op but still get a little tired - I hope things are going well for you xx

Hey Michele

Yep my op was in September and I would say I’m about back to full health now.

i got my results from the Macmillan nurse and only saw the consultant last week since the op. I think it was 6 weeks post op that my results came back a thankfully all good and no follow up treatment!

its tough because you expect to ‘bounce’ back and it definitely takes time - 4 weeks after my op I thought that was me back to full fitness but I did too much and put myself back! I felt properly fit after about 8 weeks though still got very tired. Take your time and you will get there.

i started driving at about 5 weeks after but they say leave it until you know you can do an emergency stop if you needed too.

try not to worry about your results - the main thing is they found it and they’ve taken it out, anything else you will deal with if you need too!

stay in touch xx