So scared

3 weeks ago I was told I had bladder cancer.I couldnt believe what I was being told. I had an ultrasound 6 months earlier and it was all clear .A week later the biopsy showed it was grade 3 invasive bladder cancer. Ct scan on 31st August to see if it has spread anywhere .Feel as if I'm in a bad dream .Any help would be appreciated please .Thanks xxx

  • Hi, I’m sorry you are in this situation, I know how you feel, on Tuesday after being treated for what I was told was an innocent stomach ulcer   The latest biopsy has shown it’s cancerous. I had a CT scan on Wednesday and am waiting for grading from my consultant on Tuesday.  My head is in a spin, I have 2 kids aged 16 and 9, leaving them is not an option. 

    With your cancer, I do have a positive story, my Father in Law was diagnosed with stage 3 advanced bladder cancer approximately 3 1/2 years ago, he’d had symptoms for 6 years and struggled for years to get a diagnosis, it had spread to his prostate and stomach. Surgery removed the tumour, he kept his bladder, he had a little chemo, but they decided to put him on immunotherapy which is a BCG injection (like we had at school for TB)  to this day his is fine, all his scans are cancer free and he’s just celebrated his 70th birthday  

    my mother in law had stage 3b Bowel cancer in 2011, endured a huge op and chemo but has been cancer free since, she followed a very strict diet regime and some fasting and still does to this day  

    I’m holding on to as many positive stories as I can, there is no reason why my story should be different, I don’t know what I’m dealing with yet but it will be sorry it came to my door  

    I hope your story is a positive one grannieannie (my mum is a nanny Annie!) there is so much to our advantage these days, I’m a healthy and fit 46 year old, I’ve started to modify my diet more strictly, no sugar, no dairy, green tea so far, there’s much we can do to aid our recovery 

    if you’d like to message me feel free to do so, take care x

     

  • Hi thanks for your reply.I pray you get good news on Tuesday ️ ️your two children need their mammy ️ ️I have 4 from ages 29 to 35 and became grannie annie 21 months ago to a gorgeous wee boy Luke ️and no way am I leaving him.I adore him. I am a healthy 65 and this has just floored me completely. Waiting 4 weeks for the scan is so terrifying then waiting for the results. I watched my sister die from bowel cancer 3 years ago. She only lived for 4 months after being diagnosed. My heart broke for her. i intend to fight this with every breath I have.Sending you love and hugs xoxox 

  • I’m trying to stay positive, it’s hard at times but thankfully everything is moving quickly, I’m so sorry you are having a long wait, the anxiety that waiting causes is probably worse than anything. 

     

    Im sorry for your loss, I understand how that must be affecting your own thought process, it’s all so scary but be strong for Luke. One thing I keep telling myself is that its not the worse thing that can happen to me, it could be one of my babies sick and that would mean the end of my world. 

    Hope your scan brings positive news for you and your family xxxx

  • Awww thank you. i am indeed being strong for my wee Luke. When he came to hospital to see me, he saw me lying in bed and said...Up up. Wanted me to get up and play with him. Aren't they all little miracles? And yes it could be so much worse. I can take any pain as long as my children and grandchild are healthy. Praying you get good news on Tuesday xxxIsn't it good we can come here to talk. I found it by accident, so glad I did. Thank you so much ️ ️ ️

  • Hi,

    So sorry to read about your situation, the first few weeks after diagnosis are the worst as you're not sure exactly what you're facing or how far it has spread. I was diagnosed at stage 4 almost 5 years ago, my ultrasound was also clear ... despite there being a big lump around my oesophagus that was obvious on my endoscopy and CT scan. 

    Good luck with your CT scan!

    Dave

  • Thanks Dave,hope you're doing well now.Going to fight this with every breath I take ️ ️ ️

  • I'm doing OK thanks - I still have cancer, but somehow I'm living with it.

    I reacted well to the chemo and, against all the odds, I'm still here :-)

  • Delighted to hear that Daveso glad I found this forum. Have gone from so scared to just a bit scared nowwill be so relieved to get this scan over on 31st and then hear positive news! Thank you all so very much xxx

  • Grannieanne,

    I'm sorry to hear what you're going through. Just five weeks ago, my apparently healthy and very active wife went to the GP because of a bout of constipation. He did a CA 125 blood test, and the results of that was when this whole nightmare started. This Wednesday just gone, we're told that my wife has ovarian cancer, which has already spread. She's got ascites too (abdominal fluid - usually found with liver disease, except we knew it wasn't that, my wife hardly drinks), and looks full-term pregnant. She was admitted to hospital on the same day we got the awful news, so that she could be drained, as the ascites is crippling her. Unfortunately, the draining procedure still hasn't taken place. My wife is as tough as old nails, a proper Black Country born-and-bred gal who believes in 'just getting on with things', regardless. She is fine in herself, just incapacitated by her hugely swollen abdomen. All she wants is to be 'popped', and to be able to come home.

    I don't really know anything about bladder cancer. All I can say is look around this site, you will find so many positive stories that will give you that much-needed hope we all need at times like this. It's certainly done that for me. I only joined on Wednesday evening, and I am so very glad that I did.

    I hope that everything goes well for you, and that you have a long and fantastic future ahead. Chin up, and stay positive, as hard as that can be to do at times!

    Best wishes,

    Z

     

  • So very sorry to hear about your wife and hopefully by now the fluid has been drained? I send you both all my love ️ ️ I have another 12 days yet to wait for my ct scan to see if this awful thing inside me has spread. The waiting is awful, more so during the night, when all thoughts go through your mind. Had to laugh at your 'tough as old nails' description of your wife! That's me to a T!!! Born in a wee country place called Ballygela, one of eleven children. Such happy days and beautiful memories, all of which I hope to be able to tell to my wee grandson who was born in the city. I have so many stories to tell him about the good old days ️So, I say to this cancer, I have cancer but you are not going to win this battle .Grannieannie has a wee man who needs to hear all my stories and I have no intention of going anywhere Love to your wife and all the family. Your friend Anne ️ ️ ️