Breast cancer and terrified

I've just been diagnosed with invasive lobular breast cancer and am so scared. Ive been told I have to go for an MRI and am worried this means it’s worse than the ultrasound and mammograms have shown so far. It’s been a week since my diagnosis and I’ve heard nothing about my appointment. How long should I have to wait for an MRI? I’m terrified that the cancer is spreading whilst I’m waiting. Any advice?

  • Hi Aligoo

    sorry you find yourself with a breast cancer diagnosis.

    just wanted to drop by to say in Aug last yr I got my invasive lobular bc diagnosis. Was told because it was lobular it automatically was a grade2. My next step ( like you) was indeed an MRI. As I understand it ..was standard protocol...a further check to clarify they know exactly what they are dealing with. 

    Every hospitals processes seems to b different so can only tell u mine. I was given my MRI appointment at the meeting I was told I would b having one. I was also given the follow up appt Date nd time for the results of my MRI at the same time. I was always given my next appointment details before I left the hospital so always knew what was happening when. Sadly it sounds like all hospitals do not do this. You will already be realising it is the waits that stress us bless. 

    As I say everyone is different so again for me...my treatment took from diagnosis to last day of treatment - 13 wks and 2 days (this included waits for appts, op nd Radiotherapy to start). 

    I know u r scared nd your mind will b racing ... this is is normal. 2 pearls of wisdom I was given - 1. Once you have your treatment plan in place it does actually get better because you know what is going to happen. I got my treatment plan  when I went for my MRI results. 2. Stop thinking ahead... deal with the here and now - it’s enough to b getting on with. These pearls of wisdom were of such help for me.

    Very early on I realised all the angst in the world wouldn’t change a thing so best look it in the eye nd stare it down... this helped me cope.. I hope u find your way to cope soon.

    know this... u r not alone..we are here for u if u ever need or want us. 

    Deep breaths me dear.. u can do this. In the meanwhile sending virtual hugs ️X

     

     

  • Hi there ...

    Not much I can add to our Sandras advice ... but just to say , I'd found my lump nearly two years befor it came up on a chest x ray ... I was pretty sure it was cancer, but just didn't want to know as I have a lot of other health problems and knew my body wouldn't take too much more ...

    But I weighed it all up and as it was then a grade 3 , only had mastectomy coz it was close to comming through the skin ... but I'm so glad I did ... and even waiting all that time, I'm still here a year later and going strong ... l remember the wait for op ... in the end I just wanted it out ... so you hang on in there .. there's lots of us breast lasses on here ... your not alone, and we were all scared of the unknown befor things happen ... but l would ring your oncology team and tell them your still waiting to hear and your getting anxious. .  Always one of us here if you need a chat ...  Chrissie x

  • Hi Aligoo 

    I have just been diagnosed with the same. All a bit of a shock and just been for my MRI and going to see the doctor on wednesday. Hopefully they don't find anything else or I will have to have more tests and another week to get the results.

    It's been 6 weeks from my routine breast screening to now and still can't believe it. I had no symptoms at all and the doctor couldn't find anything at the examination as there is no lump. But the little blighter is there and I know I am in good hands.

    We have to stay strong and positive x

  • Thank you for your advice. It’s all so scary and unknown.

    im a week on from diagnosis and no date for MRI. Think I’m going to call my bcn to set my mind ar rest.

     

    great words of wisdom I’ll be sure to follow.

  • Thanks Chrissie, gonna follow your advice and call

  • It’s very early days hun of course u r feeling the way u r bless. 

    I had my diagnosis meeting where findings were explained to me and some decisions I would need to make were raised for me to think about ... my appt for the mri took place the following wk with the results meeting 5 days later. Of the 13 wks 2 days from diagnosis to last day of treatment only 21 days were actual appts or treatments the rest was for waits in between. Everyone will tell u the waits are the worst part. I always tried to embrace the waits as free time from everything hospital..time to recharge batteries, grab family time with both hands nd squeeze out every moment of joy, me treats and just do what I fancy not what I had to. 

    There is another thread u might want to join in on “the good and the bad” there are a number of us bc ladies who use the thread. We range from the been there done that’s to currently having treatment. We support, answer questions (if we can), talk about anything ...good/bad, vent, what we are having for tea, the merits of a man in uniform ;-) and just shoot the breeze in general. Feel free to have a read and or join in if u fancy :-) 

    have as good a day as u can - sending hugs ️ X