hi everyone
ive been trawling these boards now for a few days and have been encouraged by many positive stories I’ve seen. Prior to that our family had been plunged into dark despair with my lovely dad’s diagnosis ; stage 4 diffuse B cell non Hodgkin’s lymphoma , aggressive. He is 78, in good general and physical health but should mention he has Sjögren’s syndrome for the past 10 years ago which increases the likelihood of developing NHL ten fold.
Just a bit of a background. Since Christmas my dad has terrible back pain. Shooting nerve pain down into hip and knee. Physic wasn’t helping . Went for mri in early May , showed a large lesion on vertebra and small one on pelvis. Was admitted to hospital straight away. Docs thought at first it was plasmacytoma /multiple myeloma. Bone Marrow biopsy came back all clear, bloods looked good. 2 inconclusive biopsies. Eventually had sergicak biopsy on vertebral lesion , major surgery with pins and screws inserted and eventually got diagnosis . The worst month of our lives. My dad has been through so much .
It’s so hard as I work full time and I’m not around to ask the consultants the questions I want to know. My mum is with him most of the time but doesn’t like asking important questions or maybe forgets sometimes. Maybe she doesn’t want to know reality . SO if I could just pick your brains :
The pet scan apparently showed lymphoma just in those 2 areas, vertebra and pelvis yet they’re still treating it as advanced . Can anyone explain how this is ? Is it more treatable now that we know it hasn’t spread too extensively or is it really bad that they’ve found it in bone??
he finished his first round of rchop yesterday and is feeling good so far.
thabk you all so much xx
