Thorough - or lying by ommission?

OK, entirely unsurprisingly my tongue biopsy proved positive and on Thursday I was told "very small", TNM "zero" so far. "Best guess, surgery..." This, despite requested further tests (presumably re spreading), I found relatively encouraging. Yesterday a head/throat MRI - again, understandable and logical further check. I was also referred for a CT scan - booked for Monday. I suppose I should have asked "of where?" but I didn't. Have now received CT details through the post - "thorax, abdomen and pelvis". I can only assume that for reasons undisclosed to me there is something that strongly suggests that the sprerad is extensive and that tongue presumably a secondary not primary site. I really think I should have been told this on Thursday. 

I am not prepared to fight a losing battle on so many fronts! I need as much time as possible to put my affairs in order, buy my unwell wife a more suitable house and arrange my own death. I thought frankness and clarity supposed to be norm these days - clearly not. The man seems to have bottled out of imparting the harsh reality. How he could have thought that this in THIS patient's best interests beyond me. 

  • Hi

     

    I have been in a similar situation lately.  I have an adenoma in my duodenum.  It was picked up at an upper endoscopy around 10 weeks ago.  It needs to be removed as it can become cancerous.  This  cancer is  not really discussed much here and I have done my own research as there is no support otherwise.  Anyway the thing is I also had to have a CT scan of my chest and abdomen.  I knew the adenoma could be the secondary although nobody told me!  It was clear.  I view it that I have been LUCKY that I have been screened the way I have.  This I think is standard practice as cancer in the duodenum is rare.  So in your shoes I would try to reframe the tests you have had done.