Emotional Roller Coaster

Got the CT results on Tuesday. They don't  know for sure if the mass on my kidney is cancerous but they think it's highly likely. The very good news is that it hasn't spread anywhere else in my body. My operation is scheduled for Friday week. It's a nephrectomy, and they don't know if they will be able to do keyhole surgery or not. The mass is big, about 14cms which makes it difficult, but they are going to start off doing keyhole. It makes a big difference to pain levels after and recovery time apparently.

 At first I was so happy it hadn't spread I felt great. And I'm grateful they are dealing with it so quickly. But after this mornings pre admission proceedures I feel pretty scared, pretty down. Doing my best to stay positive and also to accept the mood swings. I know they are natural. Be very grateful to hear from anyone who has had their kidney removed and how they were after the op. Grateful for any words of encouragement from anyone.

I've been reading a lot of posts and my heart goes out to all of you. None of us want to be in this club. The support is a real lifeline. 

  • Big virtual hug back to you. It’s a horrible time. There is great support here. I’m having to learn to allow all the fear and vulnerability. Impossible to ignore it, it’s like a tidal wave. But I find there are times when I’m OK. I hope you have those times too and I hope you are able to ask for help when you need it. Love to you. 

  • Morning to you too  blinkinlady... Please don't feel alone ... We do try to get to all new lasses or lads that need a shoulder ... But some do drop out the first pages and don't get so many replies ... But please feel free to join in anywhere you feel you'd like too ... I was the new girl, back in July last year and although I had great support, they still don't get cancer ... And how it effects so much of our lives ... But I can understand that .. but on here they get you... No matter what your feeling ...

    So please feel part of this little club that no one wanted to join, but so glad we're here .. so sending you a big friendly vertual hug ... chrissie xx

  • Dear Chriss and everyone else who has sent lovely, supportive messages. Thank you. Tomorrow is my op so the waiting is over at least. I’m very scared. And a bit sad. I’ve been lucky with my health right up until my 60th which was in March. I never took it for granted as there has been a lot of cancer in my family. Anyway, they say there is a 10% chance my tumour is benign so you never know. Trying to make the most of every moment today and not just sit in fear. My love to you and to all the brave souls who are reading this. We all support each other with love and compassion and this is how the world should be. 

  • Well lets’s get the ******* out and into a biopsy dish thenyou can start the treatment phase and recover! Tomorrow is the new beginning.  

  • Good luck for today Caroline. All be done by rhis time tonight. 

  • Hey caggie ... Just think that little blighter, is out now ... You've done the hardest part, now comes the treatment to kick cancers butt .... We're always here ... We're on the same ride as you ...

    Here's a big healing hug ... Strait at ya ...  XxX

  • Hello Gorgeous Lady, I’ve been incredibly lucky. They got it out through keyhole...all 14cms of it. 6 hour op but I’m in so much LESS pain than I expected. And clear headed despite the morphine. 

    So ok today may not be so good but I’m here which all that matters right now. Even the shoulder pain is manageable (from the gas in my tummy).

    so now the healing and the waiting begins....

  • Forgot to say... if you are on a ward I do suggest you take

    ear plugs. There are two people here who are very confused and talked really loudly most of the night. I had meditative music on literally all night which with the morphine helped a lot. 

  • Hi there brave lady ... you remanded me while I was in hospital had one sweet old lady who I think was 90 odd ... she sang "I'm forever blowing bubbles" at the top of her voice ... then soon as the nurses came to wash / feed / change her, would come out with the most profanities you could imagine .. telling them to f go away ... they were b killing her ... she was gonna get the police ... 

    Well the second they finished what they were doing she started singing bout those bubbles again .. on my last night she sang it again really loud all through the night , us three other ladies were so tired, but couldn't drop off .. l was loosing the will to live ... at 5.50 A M she stopped and was in lovely sleep .. we all went" wow, quiet " we layed down , closed our eyes , piece at last ... 10 min later at 6 A.M the nurses came in for her morning wash ... we had just 10 min... we all woke to her screaming "get the f off of me"  .... 

    The nurses and us still had a soft spot for her, and they brought her in a tape of old songs .. with bubble one too ... they were amazingly kind nurses ... but next morning , I couldn't wait to go home for sleep... and never want to hear the bubble song ever again ... still think of her, and wonder if she's still o.k , or singing it up there ...  

    Well you keep getting better ... look forward to an up date ...  Chrissie

  • Fantastic!  Recovery should be much more comfortable with smaller incisions. Don’t be in pain tho, if you need help, ask for it. No point being a martyr. 

     

    Well done. First stage complete and you’re already stringing sentences together!