Vulva Cancer

Having only 3 weeks ago been diagnosed with Vulva cancer 3 weeks ago I’m finding it hard to explain and even say that I have Vulva cancer. I have said I have cancer in the groin area instead as no-one really knows what or where the vulva is. I didnt until they told me its all the external sex organs. Not like cervical or breast cancer that people have heard of and know about. Im due for surgery in 8 days and know they are going to remove a large piece of my flesh so I’ll end up looking and feeling less woman like. I didnt even know you could get it there but i suppose cancer can appear anywhere. It has impacted on me both mentally and physically. Because it is where it is every time I go to the toilet and wipe myslef I can feel the tumour, its like a constant reminder, and the pain is excruciating. I’m going to see my doctor tomorrow as it is getting more painful day by day and I don’t want to to go over my daily amount of painkillers as I dont want to become resistant to them. I’m finding it hard mentally as no-one gets ‘your’ cancer as they haven’t got it and I don’t know anyone else who has cancer. I knownpeople tell you to be strong and fight it, thats what I’ve been doing, but its hard keeping that face on. My son came to see me this weekend and it was the hardest but the best day I’ve had for a while. I had to keep it together but I suffered afterwrds. 

Parents
  • [@SamB123]‍ I hope you have had your surgery now and your recovering well. I too have had and been treated for Vulval Cancer. If you need to chat any time please feel free to add me as a friend and drop me a message. Take care. X 

  • Hello ladies, 

    I am currently being sent for a biopsy with suspected vulva cancer

     I'm only 26yo and have a beautiful husband and daughter. I've suffered with pain and open sores for around 1 year now but was told I had.open sores due to thrush and was too young to suffer from vulva cancer.  I new myself it wasn't right as it was continuous pain. I've really got myself in a state and don't know where to turn.  How are you ladies now? How has recovery been? What happened when you first got referred.

  • Hi, I understand where you are. I am currently waiting biopsy results have a hospital app to go to this week to discuss and am pretty worried what they may tell me. I have been diagnosed with lichen sclerosus and vin and had a area removed and sent for biopsy. I was in pain on and off and knew something wasnt quite right. I'm finding there isnt very much information about vulva cancers. 

  • Hi can I ask was you constantly sore and burning and what was the result of your biopsy 

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