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My husband has been diagnosed with grade 4 brain tumour

mheffe
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My beloved husband has been diagnosed with a grade 4 brain tumour. The only symptoms he had were bad headaches and a difficulty pronouncing certain words. He had brain surgery where they removed a large fluid filled cyst and some of the tumour. They could not remove the majority of the tumour as it would lead to stroke and paralysis. He recovered from surgery remarkably well and quickly with no ill effect Thank God. He is due to start a six week course of radiation and chemo followed by 6 months of chemo by tablet. We where told that it I inoperable and incurable and given a life expectancy of 18 months.

we are hoping to prove the doctors wrong. My question is had anyone here with similar illness proven doctors wrong and lived way beyond the given period of life expectancy.

we have to hope for the best in order to live through this torment

  • Offline in reply to MrsB20

    Hi MrsB, I'm in exactly the position as you, I'm petrified about what the futre holds.

  • Offline in reply to Tony1963

     

    Hi Tony,

    I am so sorry to hear that you are in the same position as Ms Bradley. Please remember that there is always someone here who has been through this awful ordeal already and is more than happy to try and help you through.

    Kindest regards,

    Jolamine xx

  • Offline in reply to Jolamine

    And so Iv just been diagnosed with a grade 4 glio and devastated as I have a 2 year old abs now 9 week old baby! I have to live but having had surgery thst went remarkably well 5 eeeks ago I am now waiting for chemo and radio to start in a week. Is it a given thst my memory will worsen? And please trll

    me Ther is hope I could live to see my babies grow up??  Thanks in advance 

  • Offline in reply to msbradley

    What did they say about radio and chemo making him ill? I stsrt myself soon and wondering what to expect :/ frightened but trying to be strong snd hsbe hope

  • Offline in reply to hemv

    Hi Hemv,

    A very warm welcome to our forum, although I'm sorry to hear why you've joined us. I am glad to learn that your surgery went well. Did they manage to get the whole tumour away? I am not a doctor, but expect that what happens to your memory may depend upon this factor. Your consultant should be able to tell you more about this.

    I have not had chemo or radiotherapy myself, but understand that the chemo can make you feel nauseous. There are a number of different medications that can be prescribed to combat this, so if you feel that what is prescribed is not working, just let your care team know and they will find something more effective.

    I know how scary this all is and, I sincerely hope that it all goes well for you. We are always here for you.

    Kind regards,

    Jolamine xx

  • Offline in reply to Jolamine

    My husband was diagnosed with a stage 4 glioblastoma exactly a year ago tomorrow 

    he had surgery to remove it but hardly got rid of any

    he's had 6 weeks of chemo and radiotherapy then 6 months of chemo in tablet form

    he has taken it all remarkably well, only side effect was tiredness 

    he finished his chemo in October and they plan no more

    his most recent scan showed the tumour to be less aggressive 

    I just wanted to share our story... we have 3 children who know their dad has cancer but not the severity of it.. I guess while he's so well we should enjoy our time together , without a looming black cloud above our head

    we deal with it a day at a time... this whole pandemic has had a. Hidden blessing for us.. we have spent time together that we wouldn't of usually had, the kids would of been at school and me at work.. but we've had time as a family ( it's not always been easy ) 

     

    I remember my hubby getting the diagnosis a year ago  and I'd go for long walks with our dog, I would look at the daffodils growing and wonder what my life would be like in year and whether my hubby would be still with us,today he is and he's well and I count each day as a blessing 

    I'm scared of what the future holds and over think everything - usually in the middle of the night 

     

    sending positive thoughts and love to all going through this

  • Offline in reply to Sal29

    Yes so scary! I'm not 40

    yet and im

    devaststed rhis has happened while my

    babiesnare so little. There was a time I didn't know for I'd ever be a mummy so to get to the point where I have a beautiful 2 ye old son and 9'week old baby Is so upsetting. But I have to fight and I have heard of other glio patients thst are still thriving years later and I pray that I will be one of them. My boys need me and I wish to see them grow albeit not with the mummy they should have had.

    sometimes I worry my being here is elongating the pain of  everything especially for my other half but at the same time I want to fight, be strong and win back some life. 
     

    pleased I found this forum - there is another on brain tumour charity abd a lovely man there who had aggressive diagnosis in 2010 but still going strong :) chins up fellow patients

  • Offline in reply to Sal29

     

    Hi Sal,

    Many thanks for your update. I am so sorry to hear that you and your husband are going through this too. It is great to hear that, despite not being able to get rid of much during surgery, he is still doing well. It is also heartening to hear that, after chemo and radiation, his tumour seems less aggressive.

    Instead of looking at that black cloud looming, you are right to make memories while you can. This pandemic may have been a blessing in disguise for you all, but I am delighted to hear that you have been able to make the most of it as a family.

    I know that you're in scary territory, but I sincerely hope that you'll still have him with you to make many more happy memories.

    Here's hoping and praying that this comes to pass. Please remember that we are always here for you both.

    Kind regards,

    Jolamine xx

     

  • Offline

    Hello sorry to hear about your husband I am in the same position now can I ask if it worked please? 

  • Offline in reply to LaurenE2109

    hi Lauren , my husband passed away 6 months after his diagnosis :( he went thro all his radiology appts aswell , but he went down hill quite qyickly , his mobility in his legs went quite quickly so he ws very dependant on me for everything , which he didnt like tbh , but im glad he stayed at home right til the end tho , cos he always said to me not to put in hosp he hated that thought ,so it was only the day b4 he passed that he was admited due to severe pain in his back ? , and he passed 8 hrs later , but im glad he was with me til the end and gave him what he wanted , i hpe that you have a better outcome , take care , and if theres anything else i can help u with just message me :) xx

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