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TNBC Stage 4 with mets to liver and spine - Capecitabine

pam74
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Hi there, 

Has anyone been diagnosed with the same as me? I was diagnosed in 2017 with stage 3 TNBC. Had FEC-T, Left mastectomy & 15 rads. Started to feel very tired again in February 2018 with a few aches and pains. After MRI's to my neck, throat, spine, live, CT & bone scan i have been diagnosed with stage 4 TNBC with mets in my liver and spine. Im not sure you really get over the stage 4 diagnosis but im doing my best.

I start Capecitabine (Xeloda®) next week.

I would really like to be in touch with our ladies who have the same diagnosis so we can support each other with side affects & evertyhing else that goes with this vile disease.

Thanks     

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    Hi Pam and a very warm welcome to Cancer Chat.

    I am so sorry to hear about this latest diagnosis. This must have come as quite a shock to you. You probably never get over a stage 4 diagnosis, but you can learn how to cope with it. I have had 2 bouts of breast cancer. The first was 8 years ago and the second was 7 years ago. Fortunately, both of mine were still primaries. I am due to see a dermatologist towards the end of this month about a mole on my back, so am concerned about that at present.

    If you want to get in touch with others who have this type of cancer or who have been on Capecitabine, can I suggest that you go to the search facility on the blue banner at the top of this page? If you type in either of these words it will bring up previous posts on the topics, which I hope you will find useful.

    Do please keep in touch and let us know how you're getting on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Pam, 

    I'm sorry about your diagnosis but I'm glad you've joined us as you'll find other members, like Jolamine above, who are or have been in similar situations to yourself that you can chat to about what you're going through.

    I've had a look around the forum and although I can't find any members with the exact diagnosis I have found a few who have different stages of TNBC that you may like to chat to. [@Sallyjo]‍, [@Teresapaul]‍ and [@Kerry11]‍ have been diagnosed with TNBC and [@zoe2312]‍ and [@Dencol]‍ both have experience of looking after their mum's with this diagnosis and now that I've tagged them in this post some of them will hopefully be along soon to offer their support and share their experiences with you.

    I hope this helps Pam and that you're adjusting well to the Capecitabine (Xeloda®).

    Kind regards, 

    Steph, Cancer Chat Moderator

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    Hi Pam

    I think I am in a similar situation to you. I had tnbc in 2015, all clear 2016 and now mets in bones, liver and lungs. Started chemo 1st June on gem/Carbo x 6 cycles.  Hope you're doing well?

    Best

    Sherrie

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    Not sure how you have been getting on as I have just registered 

    I was diagnosed 12/16

    had chemo mastectomy. And radiotherapy 

    cancer free September 2017

    stage 4 April 2018

    on capecitabine since May

    2 scans show regression 

     

    on cycle 9

    feet a bit sore and skin very tough - plastic like 

    hoping the side effects won’t cause problems  

    mu doctor said she had known people to be on the chemo for 12 even 16 cycles . I had the impression that people were ok it for years . Any body out there who can reassure me 

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