New to melanoma and group

Had a mole removed two weeks ago. Called on phone to see me Monday 10am! Dermatologist Told me it’s a 3a (2.6mm) melanoma that will need a wide local excision then I was left to sit in the waiting room for 2hrs to see plastic surgeon!  Awaiting another call now to go in for operation which will need a skin flap as on shoulder blade and sentinel lymph node biopsy. The Macmillan nurse  Explained about the radioactive tracer &blue dye before the op to see which lymph node it tracks to but I’m feeling very numb.  What if it’s in the lymph nodes? Does this mean it’s spread? Said I would have to wait 6wks for results! I was numb yesterday. Didn’t sleep a wink last night - on a rollercoaster. Will I die? Is it that bad? Will that be the end of it? So many silly questions that I cannot find the answers to :(    Anyone else gone through this already? 

Thanks

 

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  • Hi Dizzidancer. Welcome to the forum that no one ever really wants to join.

    My thoughts are with you at this worrying time.  

    Please be aware that we're not doctors here, and I have NO medical qualifications. I happened to come through prostate cancer myself some years back, and I've had a few scares since.

    Since you ask, a stage 3A melanoma has spread microscopically to up to three adjacent lymph nodes, but it has not spread more generally. The appropriate treatment is surgery to remove a wide area around the location of the tumour, and removal of the affected lymph nodes. You may also be offered radiotherapy and other forms of treatment, but I can't say for certain whether you will or not. 

    There's no easy way to say this: stage 3 is serious, but stage 3A is the least serious with the best chance of recovery.  However, you will need to be monitored well into the future, and of course this will mean that you get constant worrying reminders. That is the lot of the cancer patient and the worry never completely goes away.  I have a PSA test coming up next month, and although I've been clear for 7 years, I feel it beginning to nag on my mind even now. 

    Waiting for treatment and results is agony. I found acupuncture treatment from a Chinese doctor to be very helpful, but I had to pay privately.  There are also any number of relaxation and mindfulness videos on YouTube.  I sincerely suggest you don't use Google as it will only increase your stress; most of us old hands here have frightened ourselves silly at some time.

  • Thank you so much for taking the time to message.  I’ve already battled a pituitary brain tumour and although it was benign I still had all the same feelings as would be expected but this time it’s really real if you see what I mean? It’s not benign, it could kill me is all I keep thinking and the guilt of putting my husband & kids through it all again. Arrrrggggghh can I stamp my feet and say it’s not fair? 

  • Just thought I'd call in again because my granddaughter has just come in with slapcheek confirmed. It made me think of you.

    I may go for surgery in a couple of weeks and we seem to be on a similar timescale so far so I'll keep comparing notes if we can ramble along.

    David

     

  • Oh blimey David!!  Apparently though it’s contagious before they get the blooming rash so you don’t even know they’ve got until the rash appears.

    apparently spread by coughing & sneezing so working in a school it just kept going round & round.

    we have 28 in our class & there were 10 cases before the Easter holidays and another 3 confirmed since we came back! 

  • Yes I’ve got a Macmillan skin cancer specialist nurse & I know it sounds silly, but I feel like I don’t want to ‘bother’ her with silly questions.  I know it’s what they’re there for but it’s just me.

    im glad to get a positive grip on things too

    thanks 

  • Another teachers perspective! Thanks it’s good to know you’re here but not, if you understand?  I just cannot deal with the stress at the moment and need time to get my head together

    Thanks 

  • As I said we all deal in different ways.  Good if you can get your head together in the quiet of home. Even though I’m a strong person, I’ve had a difficult six months with hubby Ill and brother passing away. This was just a final depth and I couldn’t cope. Whilst waiting for biopsy results I really flipped. Saw my GP and he oersuaded me to take some low dosage anti depressants. Reluctantly I kept to the minimum one a day but they got me through. I saw him again after the results and he again suggested some more long term ones. I took one then decided it wasn’t for me so I didnt take any more. I’ve had some  dark moments but I’ve got through them with the help of others here.

    i got my op date today. 17 May.. another wait but I feel more positive now I have a timeline. 

    I sent you a friend request so if you want to say something not on the  open forum then accept it and I can send a private message to you..  no problems if you don’t want to take it up. I’ve had a few friends like this who have really helped me through those dark moments when all I wanted to do was  rant...but not on the open forum.

  • Thanks I’m not sure how to find the friend request x

  • Hi Dizzidancer,

    I saw you were having a bit of trouble finding the friend request Sundial has sent you so I just wanted to share some information from our help using the forum section which explains how to find and accept a friend request.

    I hope this helps :)

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Out of surgery.  Still in hospital and in lots of pain.  The  Profressor said its a nodular melanoma, one of the worst apparently! 

  • In pain and feeling very low today - shouldnt have googled nodular melanoma! 

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