hi all

new to the forums but just looking for anyone who may have any experiences to share. Quick story last January I had a total hysterectomy following three tumours being removed, two of which were STUMP tumours which I believe is quite unusual to get, never mind to have two.  At the time the oncologist said there was a link with fibroids (which my uterus was full of as well) and renal cell cancer and because I had these unusual STUMP tumours she made an appointment for me with clinical genetics, and decided not to put me on HRT for the surgical menopause as they believed they could have been hormone driven. The clinical genetics then decided it would be better to treat me as if I did have this renal cell cancer gene as I had all the traits I had an annual MRI in January this year which I assumed was just going to be procedural but it turns out I have three further tumours one where they removed my uterus and two towards the back at my bowel, they can’t get to them to biopsy them so in the meantime have referred me for a CT scan and blood tests for my adrenal glands and are starting me on Letrozole to try to reduce the tumours.

confused and worried and looking for anyone who may have had STUMP tumours, been on Letrozole for breast cancer or anything else and any info on the adrenal/kidney part of the story.

sorry for the long post and hope it makes sense...