Melanoma

Just found out that I've got melanoma... now awaiting to have it removed and find out how thick (bad it is)

 

Worryingly (I'm only 33 and quite fit) for the last few months I've had a tightness in my chest and some breathlessness- I've a horrible feeling it's already spread to other areas (lungs)

 

I'm surprised that there doesn't seem to be more posts on here regarding this type of cancer.

 

Mark 

  • Hi there, and wellcome to our little chat room ... you will have lots of feelings at first, and it's and lows as l think it's the unknown that is so scary ... and it turns your world upside down ... but when you sit thinking "what if "  this or that, and then it's overwhelming... and we can't cope ...

    Stress can cause all sorts of things and turn average pain into cancers too, headaches, wind, tummy upset  ... that never leaves us ... it is always there in the background ...

    I'm a breast cancer lady, so can't help with the melanoma,  but hopefully others will pick this up who know more of that then me ... but you hold on in there ... cry, scream at it, and then get your boxing gloves out ready to kick cancers ***, right down the road ... coz it wants to see us crumble and give up ...we dont realise just how strong we are, till our backs against the wall ... sending you a big hug ... Chrissie x

  • Hello mark I have been told I have naevoid melanoma in my ear , I had the biopsy with 7 stitches, I’m now waiting to go to see a plastic surgeon as I’m sure more ear will be getting removed!like you  I’m very worried  

  • Hi I'm Monique I'm 38 and I have stage 4 melanoma cancer. I was diagnosed in 2015, had a lunglobectomy opp on left lung where primary was found. Lost more than half my lung. That was May 2015. June 2015 result was melanoma. July PET CT picked up it spread to brain, 3 lesions on most important parts of the brain. I had full brain radiation and Steriostatic radiation therapy in August. I am thankful today that my brain is clear but unfortunately it metasised to my liver. It is small though but ja. All I can say is what helped me was my positive attitude as I have 2 kids and hubby. 

  • So I had the area removed on the 21st of March, I just got the call that the hospital want to see me tomorrow to meet with a specialist nurse - but they won't tell me any further... A great way to make me worry!

    In the meantime I have now got another area of variable pigmentation that is spreading across my skin.

    What is the normal way / who is it that normally delivers the news to you?

  • Well, normally when you get a call without any information given its something serious. If the Dr took a sample he will either give you the results himself. I know the stress and worries of waiting believe me. Just before you go take a deep breath. Good luck.
  • They have me seeing their specialist nurse - would she give results?

     

    They wouldn't give any information on the phone - part of me thinks it might not be too bad as im seeing the nurse and not the consultant. On the other hand, to call and ask me to go in and see them the next day seems serious!

  • So I got the news.. Not as bad as it could of been, stage 2A (as far as they can tell prior to the lymph node biopsy) they are also going to remove another suspect mole.

  • Thank you for sharing this. I have two mets on my brain and just had one removed via surgery waiting to see what’s going on with the second. Have had a rocky 18 months and also have a 16 month old that I feel like I don’t know as I seem to always be in hospital! Have had bleeding on brain and seizures and lost movement but regaining it slowly. Hopeful I, and we all, can get our next scans clear. I’d be happy with small/ no growth !