Leiomyosarcoma Grade 2 Newly Diagnoised

Hi, I am 49 and I have just been diagnoised with Leiomyosarcoma of the thigh. I  had an exision biopsy a few weeks ago. Margins were clear and ct of chest ok. Follow up appointments every 3 months. It has all been a bit of a shock from having a pain in my thigh to you have cancer. I had not even heard of sarcoma before this. I am feeling very lonely at the moment. Everyone has been great but I don't think they realise how terrifying it is to be in this situation and constantly worrying if the cancer will come back or appear in the lungs. My husband and Daughter have been fantastic but I hate seeing how upset they are. Best wishes to everyone out there. x

 

  • Hi Kareni,

    So sorry to hear you’re in this position. There are some great support organisations out there, this site and the Macmillan website, amongst others, will be very helpful to you and on some you can chat online to people with the same problem. Some also have support lines that you can call. I would suggest that you look at a number of websites; educating yourself about sarcomas is very helpful, it certainly helped me enormously. Just steer clear of Dr. Google!

    It really is a terrifying moment when you are told that you have cancer and it is difficult to find equilibrium for weeks afterwards. The good news is that soft tissue sarcomas are very treatable. I hope this has been helpful. Good luck!