Endometrial Hyperplasia with Atypia (Previous CC 1a1)


Hello Lovely Ladies,

I am looking for your advice and would love to hear from anyone going through similar?

I was diagnosed in 2014 with Cervical Cancer stage 1a1, had two lots of LLETZ
and fingers crossed have had clear smear results since, next one due in March.

Unfortunately I was left with scar tissue after the LLETZ which meant my cervix was closed so could not have proper periods. I have had surgery to reopen this twice since.

In July 2017  I was diagnosed with Endometrial Hyperplasia with Atypia, I was undergoing fertility treatment as I had not been ovulating due to PCOS.

I had an operation to drill my ovaries to try to encourage ovulation, when having this operation they noticed I had a polyp in my uterus and took a biopsy which came back as Endometrial Hyperplasia with Atypia.

 This news was obviously devastating, I had the Mirena coil fitted in the August and was told I will need to have this for a minimum of six months before they will take new biopsies?

The six months will be up at the end of this month but have to not heard anything further from the hospital?

I would love to hear from anyone that is going through similar.

After trying to conceive for the past three years in fear my Cervical Cancer will come back and now this I am finding it hard to cope with.  

Many thanks

I am 35, my history in brief:
2014 - Cervical Cancer 1a1, 2 x Leetz
2015,16,17 Smear Normal

In July 2017 Endometrial Hyperplasia with Atypia
2017 August - Mirena Coil Fitted 

PCOS, BMI 28 and wanting children

  • Welcome to the forum Sarah although I'm sorry to read about your diagnosis.

    I know you're hoping to hear from others in a similar situation so I just wanted to put you in touch with [@Fuller80]‍ and [@Mel1983]‍. Hopefully they will pop by to say hello now I've tagged them in this post but if you would like to chat to someone to find out what to do about getting your new biopsies done do give our cancer nurses a call. They're available Monday - Friday between 9a.m - 5p.m on 0808 800 4040.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hello i got diagnosed with pcos early last year x i also got diagnosed with atypia hyperplasia in aug last year same as u, i had a womb scrap and the marina coil fitted and had to go back in 6 months. i went back in march to be told the coil wasnt there it has come out at some point, thinking christmas time when i had a very bad bleed, i went back the week later and had samples taken and the coil put back in x got a letter this morning that i now have hyperplasia without atypia so very pleased im moving dowm the scale im 32 and also been ttc we have been trying for 6 years but didnt know i had psos. Xx