Hello Arv.  I noticed you haven't had a reply yet and as you are obviously worried I thought I could perhaps point you in the right direction.  If you type the words - ewings sarcoma - in the blue box above your post where it reads "Search forum" you will get a list of people who have also been posting about this (their posts are set out in full) including one post from one of the moderators here which should contain helpful information.  You can then reply directly to any of the posts if  you wish to do so.  Best of luck.  Annie