No need to apologize at all! Especially not for getting wrapped up in your own disease, that's exactly what you should be doing. Focus on yourself more than you ever have now. I hope I didn't make you feel bad it was really not what I meant. I was certain that you weren't aware of how it might have come across, so I just wanted to let you know! I'm very sorry to hear that it's aggressive but coming back to HPV ( ;) ) it is very good that it's positive for it, meaning you'll be aggressive right back at it. Don't feel bad for feeling good about that for yourself. I'm just thinking that some people don't even have that straw to grasp for, so it might be very tough. 

When does treatment start for you?

Hi.. It's ok I'm fine...

Treatment touchy subject all tests done quickly but wait to see oncologist could be 3 weeks and this thing is taking a little bit of my oral cavity every day.. Tonsil, soft palate, numb tongue, can't feel top right teeth.. Blah blah blah

Any way the fight continues.. Being a squeaky wheel to try and nitro them up..

And seriously no worries 

Paula

What's your story/ battle? 

Don't worry just read your profile... Such wisdom for  one so young...x

Paula

hi has things

its more the chemo that knocks you immune system and we have a red card system here (or that’s what I’d had) during my treatment I had to carry this card everywhere I went and to be honest during my treatment a carried a little bag around with essentials and medical document ... just in case) .... if I had a fever or felt unwell I could go straight to a&zero resent the card and I would get fast tracked

i have two dogs a cat and two teenagers and was not told to stay clear of them, although I was told to stay clear of large groups of people or anyone that has flu or a cold

Fortunately I did not get ill during my treatment ... I suppose the summer months helped

so how’s things it’s you today

vatch

Hi Paula and lynne

hows your week been then and what’s new for next week then?

vatch

I’m seeing the oncologist on Monday and I’ll be told of the decision they’ve made regarding my treatment plan, team of specialists are meeting early Monday morning to discuss my condition and treatment. I had an MRI scan on Wednesday, nervous it’s shown up anything more

I am being blocked by the specialist nurse from hell! Treatment three weeks away minimum! So slow! Going mad

Lynne

sounds like it’s all coming together and try to hang in there waiting for results

paula

i am so sorry to hear that your cancer jorney is not a supportive one from the point of your medical team, hang in there with them and don’t let these issues get in the way of asking questions or telling them something that you see as little ..... it does help to have a working and good relationship with your team, I doubt the service will suffer it’s more sometimes just the relationship......Paula perhaps define some of you issues and perhaps we will be able to advise if it’s the norm or we can give you some help moving this forwards ... although in a different country the moderators on here are excellent and can help too

so to both of you

keep your spirits up, you have a lot going on at the moment And I guess you are both trying to get everything sorted right now ..... that won’t happen as you are not and will not be in control of what is about to happen. However be assured that everything you are trying do foresee and plan will help towards what you are going through ..... if you have a good network of friends and family around you .... my advice is cash in on this support as your treatment process will not only impact you but those taking you back and forth to hospital and those living with you .... 

i am very much a planner not so much a control freak and did transport schedules for friends that were taking me the 1.5 hour daily trip to the hospital ... half way through they started to change things, which I questioned and they had a go at me and told me they had it all organised .... I just had to sit back and let them get on with it ... and they did a great job and I will always be thanks full to them for it 

shout if you have something on your mind

vatch

Oh one thing you both might need to do ... two actually

1. Find yourself a place in the house where you can keep and easily access any medications you need to take during treatment. If you are having chemo you will start up your own chemist shop and if you have a PEG fitted you will need a place for stuff ... I went I bought myself a cheap plastic wheeled storage cabinet and stuck it in my bedroom ...it worked very well

2. You will need to carry stuff around with you wherever you go .... if you have chemo it’s important to carry a bit of medical info and drugs that you need to take ... just in case it’s needed. If you have a PEG you always need to carry a spare... just in case. And if

it reminded me of having a baby and all the crap you had to take out even if just going to tescos

vatch