Barb

welcome to the forum and sorry to hear your news but the good thing is that you have come to this site for advice .... 

first and foremost I am now 3.5 years post treatment for throat cancer that just popped up one day as a lump in a right neck lymph node. This was defined as a secondary cancer and I then had further scans, exploritories and a PET CT scan to locate the primary .... it was never found and that quite common I hear

although you have a diagnosis I guess further scans are being performed so that a treatment process can be defined

Education of the type of cancer is a great leveller as most people associate cancer with the worst outcome, but now days a lot of cancers are survivable

i was diagnosed on Monday April 28th 12:35 and entered Tomotherapy and chemo treatment on the 8th july, so don’t expect immediate treatment as I gues the medical team need to know a few more things

once things start to take shape in terms of treatment I would direct this person to this site as there are many things we can help with such as tips on getting through the treatment and loads of other helpful things. But mainly we are here to help and listen

i wrote a blog all the way through my treatment and will send you the link once you get a bit further along the journey as it might be too much information at this stage

keep us up to date with how it goes, but it would be great to liaise with them if they felt the need

vatch

Hi Vatch, were you told to stay away from your pets during radiotherapy?  Paula

How are you getting on? Have you started treatment yet? I had mri scan today and I’m seeing oncologist on Monday and I’ll find out then what my treatment will be and start date. Are you feeling very tired? Or having and burning sensation in your ear and collar bone area? I seem to suffer with this when lying down . Hope you’re doing okay , I’m still having the occasional meltdown but trying to be brave x

Things are moving fairly quick for me which is good , but I’m terrified of every appointment. I had a little meltdown before my mri as I fear it will show something worse , the nurse was lovely and gave me a cuddle, like yourself I I have good days and bad . I’m managing to eat okay for now. I really hope things start to move along soon for you , the waiting is torture and fearing it’s spreading is dominant in my thoughts . I’ll havs a wee look to see you I can private message you xx

I have sent a private message...x

Paula

hi has things

its more the chemo that knocks you immune system and we have a red card system here (or that’s what I’d had) during my treatment I had to carry this card everywhere I went and to be honest during my treatment a carried a little bag around with essentials and medical document ... just in case) .... if I had a fever or felt unwell I could go straight to a&zero resent the card and I would get fast tracked

i have two dogs a cat and two teenagers and was not told to stay clear of them, although I was told to stay clear of large groups of people or anyone that has flu or a cold

Fortunately I did not get ill during my treatment ... I suppose the summer months helped

so how’s things it’s you today

vatch

Paula

hi has things

its more the chemo that knocks you immune system and we have a red card system here (or that’s what I’d had) during my treatment I had to carry this card everywhere I went and to be honest during my treatment a carried a little bag around with essentials and medical document ... just in case) .... if I had a fever or felt unwell I could go straight to a&zero resent the card and I would get fast tracked

i have two dogs a cat and two teenagers and was not told to stay clear of them, although I was told to stay clear of large groups of people or anyone that has flu or a cold

Fortunately I did not get ill during my treatment ... I suppose the summer months helped

so how’s things it’s you today

vatch