Soft pallet throat cancer

We have been given the worse news about a family member with who has throat cancer . The large tumour is on the soft pallet and we are waiting for a pep scan . Is anyone able to comment on their experiences of this type of cancer? What is consider large in terms of tumour size ? 

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  • Barb

    welcome to the forum and sorry to hear your news but the good thing is that you have come to this site for advice .... 

    first and foremost I am now 3.5 years post treatment for throat cancer that just popped up one day as a lump in a right neck lymph node. This was defined as a secondary cancer and I then had further scans, exploritories and a PET CT scan to locate the primary .... it was never found and that quite common I hear

    although you have a diagnosis I guess further scans are being performed so that a treatment process can be defined

    Education of the type of cancer is a great leveller as most people associate cancer with the worst outcome, but now days a lot of cancers are survivable

    i was diagnosed on Monday April 28th 12:35 and entered Tomotherapy and chemo treatment on the 8th july, so don’t expect immediate treatment as I gues the medical team need to know a few more things

    once things start to take shape in terms of treatment I would direct this person to this site as there are many things we can help with such as tips on getting through the treatment and loads of other helpful things. But mainly we are here to help and listen

    i wrote a blog all the way through my treatment and will send you the link once you get a bit further along the journey as it might be too much information at this stage

    keep us up to date with how it goes, but it would be great to liaise with them if they felt the need

    vatch

  • Hi Vatch, were you told to stay away from your pets during radiotherapy?  Paula

  • How are you getting on? Have you started treatment yet? I had mri scan today and I’m seeing oncologist on Monday and I’ll find out then what my treatment will be and start date. Are you feeling very tired? Or having and burning sensation in your ear and collar bone area? I seem to suffer with this when lying down . Hope you’re doing okay , I’m still having the occasional meltdown but trying to be brave x

  • Hi Lynne, yes much the same except for treatment! I get ear pain a lot but yes worse laying down, and I am having a lot of pain eating and drinking... The would in my mouth is much worse than before I am going to send photos to the Dr today try to hurry them along a bit...i am having PET scan tomorrow but not likely to see oncologist for nearly two weeks so congratulations on your prompt pathway... Mine is like wading through treacle, I had a bad day yesterday and the day before was worse because they told me my situation was worse than they originally thought! But hey ho there you go... Feeling better today... Same just day by day... Stay brave... Do you know how to send messages on here privately?... Paula
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  • Hi Lynne, yes much the same except for treatment! I get ear pain a lot but yes worse laying down, and I am having a lot of pain eating and drinking... The would in my mouth is much worse than before I am going to send photos to the Dr today try to hurry them along a bit...i am having PET scan tomorrow but not likely to see oncologist for nearly two weeks so congratulations on your prompt pathway... Mine is like wading through treacle, I had a bad day yesterday and the day before was worse because they told me my situation was worse than they originally thought! But hey ho there you go... Feeling better today... Same just day by day... Stay brave... Do you know how to send messages on here privately?... Paula
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