Unclear margins

I had a lumpectomy 3 weeks ago and sentinel node biopsy. 

Today I was told I had unclear margins by a millimetre

plus the original tumour was 6-9 mm 

and there were 3 other dots too not showing on ultrasound.. 

so I need a mri to check. 

Then review treatment plan. 

Def need an op for the margins. 

Its stage 1 grade 2 oestrogen pos breast cancer. 

A dot on the first lymph but that’s been removed.. anyone Been in this situation ? 

 

Worried and scared. 

Parents
  • Hi

    i have just had a grade 2 18mm her2 neg hormone pod removed and have been for results today

    my nodes are all clear but I have a small area on the margin so have to go bzck for more surgery

    I have been reassured this is common and hopefully they will get it all and then I can heal again and have my next set of treatment

    I agree it is scary and I have come home in tears

    i was told the satalite will be similar or the same as it is from my main tumour, I don't really understand all this but just pray they get it all next time 

    I hope your 2nd lot of surgery goes well xx

     

  • Hi 

    this was 4.5 years ago. 
    still here and still fine. 
     

    hope all goes well with you 

     

    tracy 

  • Hi

    omg yes I see that now that's wonderful

    did they get the margin they wanted 2 nd time? Did you have chemo?

    im where you were then and in bits tbh so any advice would be so welcome

    thank you for coming back so quickly and I'm so pleased you are now fit and well xx

    lucy

  • Hi 

    no chemo (phew) 

    radiotherapy 

    And yes they got the margins the 2nd time. 
    They actually had got them the first time.. 

    rads was easy. 
    Also was on tamoxifen. 

    what treatment have you had? 

    just had both my knees replaced. 

  • Ps the second op was easy.

    I was at the hairdressers next day having a blow dry. 
     

    f*** you cancer!! 
    but hey I'm all good and I wish I knew then what I know now. 

    I wouldn't have googled and I would have trusted my team and taken it day by day. 
    now my knees have been done my life is amazing 

    I'm so lucky and so grateful 

    you will be fine. 
    it's so treatable nowadays. 
     

Reply
  • Ps the second op was easy.

    I was at the hairdressers next day having a blow dry. 
     

    f*** you cancer!! 
    but hey I'm all good and I wish I knew then what I know now. 

    I wouldn't have googled and I would have trusted my team and taken it day by day. 
    now my knees have been done my life is amazing 

    I'm so lucky and so grateful 

    you will be fine. 
    it's so treatable nowadays. 
     

Children
  • that's really cheered me up bless you

    I agree f**k cancer, she's a ***, I need that attitude and less if the wo is me

    how come you had 2nd op when they got margins 1sttime? 
     

    I've only just started my journey, had my lumpectomy on 10th may, results today. Lymph nodes clear so it's only in the breast which is good, surgeon only took a 1mm margin so going back for another mm and hope he gets it, it was only in 1 area and so small he said u would need a microscope ti see it! I just pray after this it's all clear, then I think radiotherapy and tamoxifen (I'm praying I won't need chemo) I'm pre menopause and the main tumour was her2 neg and strongly pr er positive so should respond well to hormone tx

    i feel so disappointed I have to have a 2 nd op but very reassured that everyone says it's much easier than the first

     

    thank you for holding me up and giving me hope

    lucy x 

  • I was so upset about the 2nd op. 
    so I went to Dubai lol. For a holiday before it. 
    it's so much easier, I recovered quick. 
    my surgeon thought it was right on the edge so he went back in. He's very thorough. The tissue has no cancer in it. 
    I had multi focal breast cancer. 5 bloody tumours! 
    all small. Only detected by mri! 
    I was screen detected. Having yearly mammogram as my mum had died of b/c at 46. 
    I was 49. I'm now 54. 
    I was so lucky.  

  • Ps I was so grateful not to have chemo 

    Rads was easy. I went every day for 20 sessions. 
    I think they do it for less time now. 
    Also my tumours were by my chest wall. 
    I had my first op 22/12/17 

    went to Lapland as thought it was my last Xmas haha. 
    then second op in feb. 
    then rads in June. 
    then tamoxifen 

    to be honest have found knee replacement much harder. 
     

    you will be ok. 
    sounds exactly like me. 
    I don't worry about it. If it returns I'll deal with it again but if it's going to pop up again it usually the first two years. 

  • Oh my goodness that's crazy

    were all 5 in the same breast? Did you have 1 lumpectomy or 5!?

    you were so lucky compared to your poor mum, what a shame treatment was so good when she was here

    sending you love and pleased you are all good now

    would love a holiday in Dubai ! Xx

  • Yes all in the ducts 

    but small 

    the whole area was 2.8cm. 
    was lucky as I had lumpectomy 

    My cancer was very lucky to be found 

    very skilled radiographer 

  • That year I had so many holidays lol 

    always before a treatment 

    I delayed rads to go to France 

    My surgeon approved as he said it was good for me 

    only saw an oncologist once 

    I still see my surgeon yearly 

    I will be discharged at 5 years 

    but I will pay for yearly mammogram after that as can't cope with 3 yearly 

    I have lots of friends who had this, all still here, all still fine. 

    if you don't have chemo I think it's a good thing. 
    I never complained about anything else as I was so happy not to have chemo. 
    i did the race for life during rads 

    make sure you cream the area before you go and when You get back 

    it can get sore. 
    I used an aloe Vera gel and e45 

  • Ps my lymph nodes were clear too 

    you shouldn't need chemo 

  • Hiya

    thank you for all your messages

    im 49 this year, I'm so worried we won't get a margin the 2nd time and feel so deflated as I had hoped it would be done and I could move to next step but hey ho

    I go on Tues so they can check me out as they were really alarmed how much bruising I had (although it looks better than it it did!) I've been using arnica cream as well!!??

    I will defo invest in the aloe Vera for radiotherapy, thank u for the tip

    We are so worried re chemo but hopefully as you say it won't be necessary, I just want to get in the right side of this and let my body recover

    it does sound like your mums up there looking out for you! I'm so pleased to hear your success story as it gives so much hope 

     

    thank you 

    love lucy x

     

  • Hi I was 49 too 

    There was a question mark over chemo for me but after all the results were in it was decided I didn't need it. 
    sounds like the same for you. 
     

    rads is fine. I have no side effects from having it. 
    You will be ok

    trust your team and trust your body. 
    I know it's easy to say but try not to worry. 
     

    it's an awful time as I know but now I feel great and I'm so so lucky. 
    if you want to message me anything 

    I'm tracy on 07861712119 

    im here for any advice you may need. 
    I reached out when I was diagnosed as it helps