Endometrial stromatolites sarcoma

Hello there,

  I'm 57 and I had a Total Abdominal Hysterectomy in May 2017 because of fibroids and bleeding after menopause. After the fibroid was analysed, which took weeks , I was told It was an ESS of low grade but I would have to have 3 monthly scans and follow up appointments at a hospital in London. 

Whilst I am pleased to be under such anazing care ,I still feel relatively ignorant about this condition and  would love to talk to anyone out there with a similar story. My present mindset is to stay positive and get on with life but just before each appointment I feel a bit nervous. My next visit is on the 18th Jan!!!

  • Hello Labelle60,

    As I noticed you haven't had a reply to your post, I thought I might stop by and welcome you to our forum.

    It sounds like you've been through a lot over the past year, but I'm glad to hear that you sound pleased with the care you're receiving from your medical team.

    Hopefully some of our members who can relate to what you are going through at the moment will come along shortly to share their experiences with you and give advice. In the meantime, if you feel like speaking to someone medically trained might help, our cancer nurses are available on this phone number 0808 800 4040, Monday - Friday between 9 a.m. - 5 p.m.

    Good luck with your appointment on the 18th, Labelle60. If you find a moment after that, come back and let us know how you are getting on.

    All the best,

    Renata, Cancer Chat Moderator