Late Stage Endometrial Cancer

Have just been diagnosed by the world's most callous consultant - too late for surgery evidently and she seemed to be offering a spot of chemo almost as palliative, rather than a structured programme which might help fight the disease.  I understand that it has spread, but SURELY something must be possible?

Horrified as have never had a day's illness in my life and there were no symptoms.  Husband is beside himself.  Christmas is cancelled.

Has anyone else been through this cancer?

Happy Christmas to you all

  • Hi dogspire,

    Good to hear you're starting to wrap your head aroud it - and that your experience with the consultant is better, as I remember you feeling that they were very dismissive initially. Nobody going through what you are needs any of that, not at any point. Awesome to hear that you're going for that second opinion, do you get to pick which specialist to go to yourself or are you getting a referral from your current one? 

    I am doing alright as well thank you, although I feel like it's a roller coaster ride - some days I'll be more stabile and more in a "take it day by day"-mood and then other days I feel...well, you summarized it the best when you said scary journey. I frequent this forum and another one that's more specific to my type of cancer, but I've noticed that the bad days are worse when I visit the other one, not for lack of supportive members but because there seems to be so many bad news and outcomes. Somehow the air is lighter here and I get reminded more and more about what you said in another thread - everyone is a statistic of 1, and a lot of factors play into that. Thank you for that. I have a CT-scan next week so we'll get a better idea of tumor size and how invasive it is. 

     

    Hugs hugs hugs,

    Dee

  • Good luck with your scan.  I follow Macmillan and this .  Have to stop myself becoming obsessive though.  Hasn't worked too well as you can see by the time.  Sleep is a rather elusive commodity nowadays.

     

    Hugs and blessings to you.

     

    Dogspire

     

    Xxx

  • Hi dogspire

    Good luck tomorrow.  Ask as many questions as you want even if they seem silly the more information you have the better.  I used to write a chemo diary of how I was feeling each day and this helped me with the bad days as I knew when they were going to come.  I had a reaction to the steroids so they reduced the dose so any feedback is useful.

    To Flexiblestraws also - you will get up and down days I went from being really posative to planning my funeral so its perfectly normal.  One of the things I did was decide who I was going to leave things to - not the big things the little things like my handbags, costume jewellery, scarfs etc after about 10 mins of this I cheered up thinking of what my friends and relatives were going to do with all my stuff.

    best wishes to you both

    River

     

  • I think we've all had such an awful Christmas. I've just been diagnosed with womb cancer. The biopsy has said it's grade 1 and give to go for MRI Scan on Monday to see what stage I'm at. 

     

    I've got abdomen bloating, indigestion, pain in my pelvis, groin and vagina. I also have lower back pain. I'm really worried that I've missed this.

  • Hi...please can someone give me some hope. My mum has been diagnosed with endometrial cancer that has spead to her chest cavity and liver. She has had symtoms since April 2018. Our GP kept treating her for urinary tract infections but after asking to see a different doctor the last week of December it has spiralled out of control. Two scans a CT scan  two weeks in hospital and a camera later my mum has to show the oncologist she is strong enough for chemo orher wise he wont LET her have it. Up until her devastating diagnosis she was the strongest most positive lady i have ever known. I feel she is giving up i know she is terrified but i so want her tofight this with every ounce of her being. Any words of help will be so greatly appreciated.  Thankyou xx

  • Hi Hiccup,

    i just wanted to reach out as I too was diagnosed with endometrial cancer this Christmas. It’s been awful and I’ve been thrown into a pretty similar world of tests, tests and more tests.

    Im 30 and because my cancer was a later stage I am having to have a hysterectomy next Friday and im bricking it. The difficult thing is the emotional side as I’m so focused on being cancer free but I am losing my chance to ever be a mother. Feels like a cruel treatment.

    I just wanted to say, that despite things feeling bad now, we are so lucky that they have found the cancer as it’s often one that gets missed. If you ever need to chat x

  • Hi

    my wife 48 also has been disgnosed with endomtrial cancer 2 weeks ago and now they are suspecting primary could be stomach cancer after doing a endoscopy they found gastric tumour??? Biopsy results have not yet arrived.

    My wife had a full abdominal hysterectomy ten years ago ten years ago so is this possible?? At this moment I’ve one hospital saying it’s stomach and another saying possible endometrial???

    my wife was having private treatment for 3 years and she was on a wait and watch for possible lymphoma. She had 6 scans 3 biopsy and numerous blood test in the last 3 years to avoid this day!!! October 2018 my wife’s consultant said she has no major issues and was happy she has no lymphorma. We were so happy that the scare is over and let’s enjoy our life and move on and booked a holiday. 

    Then happiness was gone when all of a sudden in January she had abdominal pains and was admitted in hospital and now discovered cancer !!!

    we are so confused at moment is it stomach or is endometrial cancer ???

    i have now gone to Manchester and I have good confidence in themthatv they will give me a correct diagnosis. Hopefully then they should have a treatment plan after a correct diagnosis. 

    As a husband I can feel my wife’s pain and I hope we all go through these hard times. It’s hard but we all have to be strong and positive. 

     

     

     

  • I just read your post, how are you feeling now? its really sad that you have cancer. 

    My mum has been diagnosed with Malignant Neoplasm of Endometrial Cancer stage 4; the doctors will start her chemo tomorrow.

    We all feel shattered, not sure how she will get on, its too late to remove the uterus as the cancer has spread to her abdomen and lining of her right lung. There is a fluid build up in her lungs which the keep draining.

  • [PLEASE ANY ADVICE FROMY ANYONE WILL HELP]

    Hello I know you posted your comment more than a year ago i want to ask you on how you are doing an what stage you were given and if you have beaten this yet. If I could ask a question not for myself but for my mother she just did her biopsy and were waiting for the results the lady said it was full with polyps and the linging of the uterus was thick, she has all the symptoms you mentioned. What do you think the prognosis would be I know you cant say but I'm extremely stressed. I hope the polyps are non cancerous and it comes back negative however I keep reminding myself that she has all the symptoms of the cancer any help and advice would be appreciated.

  • Hi, am so sorry to read about your mum, I do hope that things got better, please post and let us know how she is doing now. Prayers and thoughts are with you both xx