Hi

Hi this is all vey new to me, my husband found out he has advanced Prostate Cancer in September and he starts his first chemo tomorrow, it has spread to his lymph nodes in the pelvis and also to his pelvic bone and right shoulder bone, so it’s non curable. He is 53 and we have 3 boys 13,11 and 8. It’s been a whirlwind few months. We were just recently treated by my boss to a holiday of a lifetime to Florida and Disney where we made memories that will last with us forever, it was amazing and we were so lucky to have had the time of our lives before his treatment starts tomorrow and I know life won’t be so easy.  I guess I’m looking to talk to others that are going through the same thing at the moment that understand and for advice etc. I’m very worried about how he will react and feel during his chemo and what lies ahead. His oncologist and the nurses are so amazing though.  Thanks for reading and look forward to hearing from you!

  • Firstly you are in the right place for advice and support, we've all unwittingly become members of a club no one wants to join!!

    I've recently been diagnosed with tonsil cancer, I have need surgery before my radiotherapy! 

    I don't think I can offer any inclination as to what radiotherapy or chemotherapy entails. But I can listen.

     

    Good luck 

     

    Debs xx

  • Hi Vickla,

    Welcome to the forum and thanks for sharing your story ith us.

    This may sound like a cop out but everyone is an individual and we all seem to react differently to chemo. The best advice I ever received was to take nothing for granted and to take things one day at a time. These may seem like soppy platitudes, but they are so true. 

    Practical advice - buy a liquidiser if you don't already have one and get ready to make home made smoothies, powershakes (peanut butter/banana/chocolate with full fat milk) and soup. When I was on chemo I had trouble keeping solids down but these all helped me avoid losing too much weight and kept my immune system fit for purpose.

    Best wishes

    Dave

  • Hi there, I hope I can offer you some form of advice and support. My dad has been diagnosed with cancer 3 months ago so I know how it feels to watch someone you love in pain. I also have a terminally ill partner who has cystic fibrosis who is expected to not live past 40/45 so the concept of death is very known to me, unfortunately. I live every day as it comes and make memories. I like to make the most out of every second as tomorrow is not certain, not for anyone!! 

    I really applaud you as I know the emotional toll this experience can have. Especially when you have kids to look after too. At times like this, I know it's hard but be grateful for the years you've spent together. 

    My dad is having chemotherapy on the 5th Dec so I'm also worried about it. I don't think it's as aggressive as the film's make it out to be! I know vomitting, nausea and tiredness are common symptoms but I hope they can be controlled. 

    P.s. I have a question concerning your husband, are they giving him chemo to further his life? Has a prognosis been made. Sorry if this is too personal. 

     

     

  • Hi, thank you. He  has been told his prognosis is measured in years, hopefully 10 or more but we won’t know until he has his Psa checked after the chemo. He has already started hormone therapy which he will be on for life. It’s really hard as I’m a care assistant in a nursing home and work full one and 12 he shifts so having to juggle that around with the kids will be hard while he is having treatment. I hate seeing him suffering and seeing his scared of the unknown and not being able to do much but be there. The chemo is to help with his life expectancy yes.

  • Thank you, I have heard this a lot about the smoothies and soup I will definitely get one of those. 

  • Hi

    I am just the same as your husband incurable with bone mets, had my treatment and yes it's a very tiring and emotional time especially now at Christmas, I have no idea of my future but hopefully I will last until the next miracle cure comes along.

    Meantime make sure you watch his Tempreture very important, he will be losing his taste buds, but try to keep the sugar intake low as cancer loves this fruit without skin on is good pulses and fish chicken things like this are good. I just drank lots of water to flush the poison out ( chemo ) helps a lot.

    Hope he's managing the treatment it can take its toll on some people.

    Take care we all hope it works for him.

    Joe