Glioblastoma

My Mam was diagnosed with stage 4 glioblastoma a week ago and I'm struggling to come to terms with it. Not because I don't know what it means but more the fact of how to cope. My Mam is only 56, she had a stroke during her operation and doesn't really know what's happening. Selfishly I felt that I lost my Mam the moment she went down to theatre, therefore if the prognosis is correct, am I wrong for never wanting her to know what is wrong with her? Please advise xx

  • Hi there, and welcome to our little chat room ... bless your heart, you’ve only had such a short time to take so so much in, your brain must be spinning... and your thoughts all over the place ... there’s a free phone on here and McMillan have one too where they can explain your questions you must be thinking ... I used them a couple of times and it helped talking to a trained nurse .. they are there for any one needing help with how your feeling ...I’m sure your mum will tell you how much she wants to know, just ask her... as it’s her journey and you can hold her hand on this path .. but let her lead the way ... 

    im on my cancer journey and all my family, son, siblings, nieces and all support me on everything ... they may have an option but they know the last one is mine... it gives me the feeling I can still say what I want, and they give me the support, love, I need .... 

    some people want to know everything some nothing, most somewhere in between.... but if you get some more time with her, make the most of every day ... hold her hand ... talk about things you have in your heart ... listen to how she feels, what she wants and what’s in her heart ... 

    my mum went suddenly with heart attach... what I would have given for even one more day and had the chance to do those things with my mum ... every day you have is a bonus, be it long or short ... make memories your heart will hold.. remember the good ones.. no one can take them away ... 

    sending you a vertual hug Chrisie ️ Xx