Hey everybody I am new to this online system.

I am looking for advice or information.

I am 26 years old and have Aspergers Syndrome. I do not like unpredictability. My granddad has recently been diagnosed with MDS / over lap syndrome ( Mylodeplastic syndrome).

He has been very unwell recently and the blood transfusions are lasting around 2 weeks, there is no cure for this condition. He was a very active man and his work was his life. Even at 75 years of age he would get up at 5 in the morning and get home from work at 6 at night.

I am worried about his psychical and mental health as he is showing signs of depression. We are waiting for further tests and we have an assessment on Monday.

Dose anyone have a life expectancy range?

I feel extremely sad and worried about what will happen in the future. I have never been able to understand the concept of death. To me it dose not make sense that after 80 years of life someone consciousness is gone FOREVER – that just seems impossible to be true and is very difficult for me to deal with. Further more I don’t know how I will support my mum because she will be devastated beyond words and I feel powerless to do anything as NOTHING will make it better.

Any advice on what this disease actually is, prognosis and any other information would be helpful.

Thank you so much!