Hi there jo ... so sorry to hear about your son ... they never stop being our babies ... my youngest 36 has been type 1 diabetes... since he was 14 and I’ve nearly lost him twice over the years with hypos ... and every time he gets sick his blood sugars were all over the place ... saying that he’s doing really well now .. but I live on a knife edge waiting for a call to say something happened... but learning to live with it ..

not sure what that is your son has but will look it up ... all I can advise is, try to keep calm as possible.. find out everything you can ... give him a mummy hug and tell him your right there to walk beside him .. and listen to his worries, like you did when he was small ... they look to us to appear calm and it makes them calmer too .. then have a good cry after ... try not to look too far ahead and think all the “what ifs” coz then it’s overwhelming... live in the day ... sort any thing as and when it pops up ... 

now im on my cancer journey, it’s my sons turn to keep calm and hold my hand.. which he’s been amazing ... it’s my daughter in law who told us .. to find info .. no more “what ifs” and she said we’ll tackle problems when they arise... together... and it was the best advice ever ... I’d done that for him, and he’s now calm and holding my hand through this ... although we’ve had a few tears, and lots of hugs ... and because wer all calm we have talked about everything .. I’m so glad I did ...

i don’t know if any of that will help... it just helped us ... sending you a big hug Chrisie ️ Xx

Hi there , I read a little about what your son has , it looks like it’s quite rare ... and think it said 20 to 35 it effects ... there’s so many different ones you can get ... there’s so many people going through it now ... years ago you rarely knew any one with it ... my cousin passed away bout 10 days ago with lung cancer .. he hadn’t smoked for 30 years .. he was the joker in the family and bless him he still was right to the end ... your son sounds amazing ... he sounds like a fighter and hope he can kick this cancer , that’s got no mercy... young , old , fit , it doesn’t care ...

i have brest cancer ... had my mastectomy some ten weeks ago ... it’s stage 3 her 2 ... so I had a total one ... but at my age I’m fine ... I was taken back to theatre at 3 a m next morning as I suddenly had pain all around my chest .. as I have low blood pressure, it plumits quickly.. I said I think you need to test it ... everything went crazy and they called my son and I was sure I was a gonna... but I came round and they said I’d had a bleed an they got 1 an half litre of blood off my chest ..but I came round full of beans .. I don’t do things by half ... but I’ve got a lot of arthritis and scoliosis in my spine so won’t have treatment coz bones are so weak ... saying that I’m feeling fine now ... doing really well .. just greatful for every day ... that’s why I have so much time on here ... it helps me too .. and I want to give something back , if that makes sense ...

right you was asking bout cannabis oil ... there was some discussion on here a few weeks ago bout it ...I think they said there is a legal one and an illegal one ... but I’m sure whoever it was said it helped ... the nurses on here answered the post .. so maybe ask them .. or put a post on asking coz I’m sure you’ll get an answer ... I have heard and I would use it my self if an when needed ... 

I totally know what you mean about a bubble ... I remember when I lost my mum and the ride home in the car from the hospital where she died , I couldn’t understand why people were walking about , why hadn’t everything stopped... people passing me in the street and I couldn’t see how my world had turned upside down, yet they were passing me without a care in the world ... I wanted to scream and tell everything to just stop ... my cancer is a strange one, it’s like it was a dream and doesn’t feel real ( till I look down ; ))  ) 

well sorry for rattling on ... I do get carried away ... let us know how it goes Monday ... will be thinking of you and your baby ... keeping everything crossed ... you take care .. from one mummy to another a big hug Chrisie xx ️