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2nd round of Myelofibrosis

subsell1812
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I was diagnosed with myelofibrosis in 2008 and had a BMT in 2009. Felt great for the next 8 years but have recently gone down hill and after tests have been re-diagnosed with Myelofibrosis again. Anyone out there that has had to go through this twice? It would be great to chat with someone who understands the side effects of this and whether or not they are facing a 2nd BMT?

 

  • Welcome to Cancer Chat, subsell1812, although I'm sorry about the reason that brings you here.

    Hopefully, you will find some support here on Cancer Chat, as talking does seem to help a bit. Many of our members have been in a similar situation so I'm sure some of them will come along shortly to offer their advice and share their stories with you.

    Also, feel free to give our cancer nurses a call about this as well. Their lines are open Monday - Friday between 9 a.m - 5 p.m on 0808 800 4040.

    Warm wishes,

    Renata, Cancer Chat Moderator

  • Offline in reply to Moderator Renata

    Thank you Renata

     

    That really helps a lot. I feel sometimes that my immediate family have heard enough about me feeling ill that chatting with someone else may be helpful!

     

    I would like to chat about how I feel, which is not always as strong as everyon thinks I am.

     

    Jane

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