Nasopharyngeal Carcinoma (NCP) and Proton Therapy

My wife was diagnosed with stage-3 nasopharyngeal carcinoma (NPC) on Sept 25th 2017.

While evaluating our treatment options we have explored in detail the potential of Proton Therapy as an alternative treatment, mainly due to the potential reduction in long term side effects. My wife has done an incredible amount of research on the treatment but I wonder if anyone else was looking at this, and if so how far along the journey are you in making decisions? Have you chosen a centre, if so where? What have you been considering ? 

Really interested in other people's stories on this ...

Chris.

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    Hi Chris,

    Welcome to Cancer Chat and I am sorry to hear about your wife's diagnosis. Have you spoken to your wife's consultant about Proton Therapy?I have had two bouts of primary breast cancer myself and I also lost my mother to secondary breast cancer. I was diagnosed 7 years ago and had the second bout the following year. Due to procedural delays in surgery, I had grave concerns about radiotherapy. I discussed this with my surgeon and he referred me to 2 eminent researchers in radiotherapy for advice.

    The advice from the 2 were at polar opposites to each other, but it did give me enough evidence to decide for myself and decline this form of treatment at that time.

    Have you tried using the search facility on the blue bar at the top of this page? If you pop in Proton Therapy, it should bring up previous posts on this topic, which you might find useful. You might also find it helpful to discuss this with the nurses on this site. They can be contacted by Freehone on 0808 800 4040, and are a very helpful bunch.

    I do hope that, whatever your wife's decision, it is the right one for her. Please keep in touch and let us know how she gets on. We are always here for both of you, whenever you feel like talking.

    Kind regards,

    Jolamine xx

     

  • Hi Chris, My sister in law was recently diagnosed with this cancer.I was doing some research online when I came across your post. My understanding is that this is an extremely rare disease and she is finding it difficult to find any real information because of this. She is due to start radiation therapy and chemotherapy the week after next and I understand the dosages for radiation are very strong.Recently I heard about proton therapy and the advantages it would have over the radiation therapies and am trying to investigate and at the same time not interfere as the treatment she is due to receive is coming around so soon. I would be grateful if you had any advice to share at this time as we are very much in the dark in terms of what is out there ... it is so rare ,I don't believe there is any support group etc ? I hope your wife is getting good care and I wish you and your family all the best this Christmas season. Marie