Hi Tallakisa, Thank you so much for your reply. What a wonderful story of hope for the often difficult prognosis we often face. As you said God has granted you so much. But we are human and living with cancer is living in another world. Thank you for sharing that you have feelings much the same as mine. Being able to sometimes release these feelings can help and being the first time for me it has definitely helped me pick up on the positive again. So pleased you have been so blessed with years , continue in strength. And thank you.

Hi My mum was diagnosed July 2016 carcinoid Tumor found incidentely, while having a vascular surgery . They could not biopsy at the time as this would have contaminated grafts put in for vascular surgery. So three months later colorectal surgeon removed Tumor prior to surgery he had said stage 3 however after surgery it has been staged 4 as gone through bowel wall and affected lymph nodes. My mum Was told her bowel cancer was not the normal bog standard and they were not sure chemo would be useful however the protocol was to give a course of chemo my mum refused she is 77 and she said she didn't want to become ill and having others looking after? However she's now having symptoms of vomiting poor appetite and abdomen pain she has a ct scan with contrast on Tuesday ? We are wondering is this the carcinoid ? Or possibly just constipation or diverticulitis ? Any comment appreciated

Hi, so sorry to hear about your Mums difficult time, my thoughts are with you all. I can only say of my experience with Carcinoid as it can be different individually. I did get very bad abdominal pains but these were helped when I had the intestinal tumour debulked ( they could not remove it completely). The Carcinoid syndrome develops when the cancers has metastasised to the liver and after a while the liver can no longer filter the rubbish and the body gets dumped with a possible wide range of hormones. My Carcinoid symptoms were and still are to some extent - extreme flushing of my face, neck & whole body which often comes with stress or exercise. Also my asthma has worsened as it can effect breathing and I also get diahorrea. These are classic Carcinoid symptoms. Abdominal pain is also a possible though my pain has lessened since surgery. I do however also have Diverticular disease and my Nets & Carcinoid do seem to make this worse. Vomiting can be a symptom from the liver I think as this happened after I had liver embolisation to cut of the blood supply to some of the cancer mets there. Your Mums tests with the contrast may show if it's Carcinoid but from what I remember I had an Octreotide test which shows this to be present. I do hope the Doctors can give you an answer after the tests but it's definitely worth mentioning Carcinoid Syndrome as it's not always thought of. I have not been offered chemo so I cannot comment on that but I know some people prefer not to go that route. I am 60 years old by the way. Wishing your Mum and your family the very best as you travel on this journey.