SMZL Is anyone else out there?

Hello dear people, My name is Marina. I have recently been diagnosed with stage lV SMZL (Splenic Marginal Zone Lymphoma). SInce this is a very rare form of NHL, it has been difficult to find information about what to expect and how patients are living with this disease. I'd love to hear from anyone who cares to share their experience. Thank you !

 

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    HI Jacqueline,

    There is a private message facility on this site, where you can swop any information you want. You send a friend request to whoever you want to speak to and, so long as they accept your request, you can speak to one another privately. I hope that you are keeping well.

    Kind regards,

    Jolamine xx

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    Hi Dan,

    Welcome to our forum. I am afraid that I cannot help with your SMZL (Splenic Marginal Zone Lymphoma), as I have had 2 bouts of breast cancer and, know nothing about your condition. However, you might find our search facility helpful, as there are quite a number of contributions about this condition.

    If you go to the search engine on the blue banner at the top of this page and enter SMZL into the box, then click, this will bring up previous posts on this topic.

    I hope that you find this helpful. Do please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx