Husband 37 terminal oesophageal cancer

My husband has been living with Cystic Fibrosis, a long term illness his whole life. Out of the blue he's been diagnosed with non operable, non curable oesophageal cancer which has spread to the nodes. We've 2 children, 6 and 8 and I simply don't k ow how we'll get through this and life after this. Any advice, words of wisdom welcomed.

M

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    Hi Marmal,

    This news must have hit you both like a ton of bricks. As if it wasn’t bad enough to have to deal with Cystic Fibrosis, it’s hard to believe that your poor husband has drawn the short straw and has now been given a diagnosis of Cancer on top of everything else.

    To hear that his condition is inoperable must be hard to take at just 37 years old. Has his care team come up with a treatment plan yet? Waiting for results of tests and for treatment to start are some of the most stressful parts of the Cancer journey. Try to keep discussing things – It is so much easier for both of you when you both know all that there is to know.

    When I was first diagnosed my husband and I decided to update our wills, arrange a power of attorney and make some funeral plans. I know that this all sounds a bit grim, but we feel happier since we did this. With two young children you will be anxious about finances. There is some funding available if you need assistance – it’s not a lot, but better than nothing. You can find out more about this from your care team. Groups such as MacMillan and several others can help you with this.

    You are getting ahead of yourselves and trying to look at the bigger picture. Unfortunately, this doesn’t work, just try to take things day by day. Make the most of the time you have and set about making beuatiful memories with your young family.

    I am thinking of and praying for you both.

    We are always here if you want to chat.

    Kind regards,

    Jolamine xx

  • Hi M,

    First of all I'm sorry to read about your husband's diagnosis, which is very similar to my own.

    Has anyone actually used the word terminal when describing to you his diagnosis and prognosis? I ask because having an incurable and inoperable condition doesn't automatically equate to having a terminal condition.Sometimes it does, but not always.

    My own Oesophageal cancer has spread to distant parts of my body and is also incurable and inoperable. I was given this diagnosis in October 2013 and I was lucky enough to respond well to palliative chemotherapy. 

    I mention this because I know first hand how devastating the diagnosis can feel and how hopeless the future can look. 

    Try not to give up hope and remember that any prognosis is based on the average patient and the available survival statistics cannot and should not be used to try and predict the future for an individual patient. Average expectancies do not take into account a patient's age - at 55 I was told I was unusually young for this diagnosis! As many patients survive longer than average than survive shorter than average and the difference between the two extremes is huge.

    Best wishes

    Dave