My mum has been diagnosed with incurable lung cancer

Hi there guys, 

My mum has recently been diagnosed with incurable lung cancer, and has been offered chemo/radiotherapy to prolongue her life. I am having an incredibly hard time trying to process all of this, and often find myself going into states of denial. I am 21 years old, with three fantastic brothers, a loving father and a mum who has been my bestest friend. Whilst I can manage to keep myself positive and hopeful when I am speaking with my mum, as soon as I am without her completely fall apart. The doctors suggested without treatment, she would live around 8 months, and with treatment, about a year and a half. Are these predictions based off of general statistics, or on the individual patient themselves? Something I just can't get my head around, is the fact that my mum at the moment is absolutely fine, she doesn't look or feel ill, it just doesn't make much sense. I've never felt so much pain. My mum is so scared, all I want is to make it better and fix everything but i can't.

My emotions come in waves. I have a constant heaviness in my chest and a feeling of sickness, which creaps up to my throat when i'm feeling really sad, and sometimes I feel incredibly positive, full of hope and enthusiasm. Something I have found is that grieving is just like a cold; it hits you the hardest first thing in the morning, and last thing at nightime. I spend all of my days dreading nightime, because everything I have tried to shut out comes creeping back up on me, and when i wake up in the morning, remembering whats happening hits me all over again.

The diagnosis is so hard to process, because we have absolutely no control over it, you just have to carry on. It's hard to take that in.

The medical notes have said the cancer is incurable but chemotherapy will prolongue her life... do you think there is any chance she could pull through this? She has always been very skinny, so i'm focusing on bulking her up and keeping her healthy for the chemotherapy. If she responds well to the chemotherapy, do you think theres a chance she could make it? 

I am so sad for her because I know she's afraid she'll miss out on so much, so i'm pushing her to fight and stay positive, just in case theres a chance.

My heart is absolutely broken, and often those closest to you just don't know what to say. Usually when im down I go to my mum for advice and support, but under these circumstances i've been staying positive around her, and therefore not confiding in her much about this, do you think this is the best thing to do? I stumbled across this page and decided that perhaps this may be a way of getting all of this out of my head. 

 

Thank you for reading! 

  • Firstly, my heart goes out to your Mum and your family. My Mum was diagnosed with advanced lung cancer in February 2017... sadly she passed on the 22nd of May on her 66th Birthday... have you spoken to Marie Curie? They were a fantastic source of help to myself and family when mum was ill x

  • Hi SophiaRosetta, 

    I have sent you a friend request if you would like to chat some more. I just wanted to know how your mom is doing, and I hope that she is doing okay. Just try to live for the moment right now. I always try to remain positive, as I wouldn't want my dad to be saddened by this affecting me negatively. It is okay to be upset, but try to still live your life. Our parents want us to continue on, and to know that we will be okay. 

    Another thing I could suggest is talking to someone that you can trust, whether it is a friend, therapist, or another family member. Sometimes people who have been through a similar situation that you know in your city may be of help as well. 

  • Hi my mum has started to lose her hair because of her lung cancer and I’m feeling really upset can you give me some advice on what will cheer me up I’m sorry to hear about your situation 

  • Hi Sophia, so sorry for your mum, have you realised there is a big difference between terminal and uncurable I've been uncurable for over 3 years now still living a normal life still got Cancer just living with it if cemo works and shrinks the C your mums life can get a lot better remember it has to shrink it down to help, i hope I'm not getting your hopes up to much but you sound very panicky,. You have to look after yourself as well what happens if you get ill. Best wishes.

    Billy 

    P.s any time you knead to talk there's loads of people in the forum to help you. 

  • Hi Sophiarosetta.   You have put my feelings into words.  My mum has just been given the same diagnosis and I wondered how your mums journey evolved.   Hope you dont mind that I have asked   x

  • Hi Nicjmac,

    First of all I just want to say i'm really sorry to hear about your mum, and sending you all the positivity and hope throughout this journey.

    I haven't used this forum for nearly 4 years now, though saw your message pop up through my emails and wanted to respond to share a little hope.

    My mum was diagnosed 4 years ago, and was given a very daunting prognosis of 8 months without treatment, and a year and a half with treatment. I feel so lucky to be typing to say that we still have her with us now, in great health and high spirits. She went straight onto Immunotherapy, and stayed on it for the full two years - she would go to the hospital once every three weeks for an hour or so to receive the treatments. During this time her tumors did not change much, they didn't grow or shrink, they just stayed the same, stable. 3 months after finishing treatment her scan showed that most of her tumours had shrunk considerably, and 6 months after, miraculously - they had all somehow completely gone, all that was left is the scar tissue. The immunotherapy kept on working after she stopped using it, and even while she was using it she didn't get very sick. She still has emphesemia, so coughs quite a lot, but other than that she's doing really well. She has a big scan tomorrow to check she has the all clear, she has this every 3 months. 

    If there's anything i've learnt through this journey, it's to try and stay positive in your mindset, but also don't bottle up emotions, let everything out, whether it's through writing or talking about it, it really helped me. 

    Has your mum been offered any clinical trials or Immunotherapy? These are avenues definitely worth exploring.

    Also, something that really helped my mum - I gave her an ipod with some really uplifting music loaded on there for her, so every time she went for her treatment she could feel positive. She spent a lot of her treatment sessions just reading magazines and listening to music bless her.

    This can be a really scary time, so if you have any questions please don't hesitate to message me directly, i'd be happy to help wherever I can. xx

  • Thiank you so much for replying and with such amazing news!!     I am so pleased for you.  Mum cant go straight to immunotherapy as she doesnt have the pdl marker you need so she started on platinum doublet chemo.  She was admitted with a water infection a few weeks ago and now may need a blood transfusion so its beating her up quite a bit.  They arent sure if her cancer is too advanced for radiotherapy but will know more after her scan on 6th july.  I am really hoping she can have it as it will increase her chances a little bit but also would mean she could have immunotherapy as 2nd line treatment.   

    I was really nervous about contacting you incase you had bad news that was painful to talk about.  It really is amazing to hear that you still have your precious mum and she is doing well.  I hope she continues to do well for many more years to come.  Nobody can know how this rollercoaster ride feels unless you have been there.  

    Thanks again  xx