Welcome to Cancer Chat, Steff29.

I'm so sorry to hear you have been diagnosed with brain stem glioma last week and that you are feeling so scared. I'm glad you are trying to stay positive and will start treatment soon, though.

When I read your post, I thought of another member, [@Carol19]‍ , who posted about a month ago about being diagnosed with glioma and wanting to connect with others who have brain cancer. You can read her post here and if you post a comment on the thread then she may get a notification and reply to you. 

We do have a team of cancer nurses if you ever wish to speak someone on the phone. They are available on this telephone number 0808 800 4040, Monday through Friday between 9 am to 5 pm.

I hope you will find our forum helpful and supportive, Steff29. And when you have a moment do come back and let us know how you are getting on.

Wishing you the very best,

Renata, Cancer Chat Moderator

Firstly, to anyone frantically searching the Internet - Don't (although it's probably too late for that, but try and limit this). I was discussing this with a friend recently - people don't seem to post the good stories, the near-misses or scares, simply because they forget to and they move on. In 2017, I was diagnosed with an inoperable Midbrain Glioma. I was 27 at the time. My partner frantically searched the Internet and we basically found nothing positive. I went through an aggressive course of six weeks of Radio / Chemotherapy, followed by a long twelve months of further Chemo. Long-story short, the treatment was successful, the tumour reduced significantly and I'm fine People don't post the good stories often enough - remember that. Good luck! 

Good morning from across the pond UK). I was diagnosed with glioblastoma 4 in July 2019. After 4 hours of surgery they removed the whole tumour. I have so far suffered no adverse effects, occasional headaches but am ok. I know what you mean about not reading about a brain tumour, I feel it is like a fairy story (Grimm), but it draws you in. My wife and her family have told me not too, but it has its tendrils everywhere.  It could worse with the other C now around, but just isolate and watch the world go boom in a handbag. My personal thoughts. 

Is there anyone I can talk to my husband has been diagnosed with glioma 3-4 I am heartbroken devastated I cant cope.