Hi Pauline,

It is a dangerous thing to start surfing the internet. We latch on to the worst case scenarios and tend to attribute them to ourselves. When do you get the results of your biopsy and CT scan?

Keep in touch and let us know how you get on. We are always here to support you whenever you feel like chatting.

Kind regards,

Jolamine xx

The problem with the internet is that you can find any answer you want, good or bad, if you look hard enough.  Have scared myself silly over the last few weeks reading percentage chances of survival and conversion to different types.  For me it is always worse during the periods of waiting, uncertainty and feeling out of control.  (And at 3 in the morning when I seem to wake up now!!)

Hope you get your results soon and remember it is ok to tell the specialist what you are worried about.  In my experience they have been very supportive and factual.

Thoughts are with you

Nick

Hi I have had the results and they said its a recurrence of previous breast cancer from 9 years ago, I'm waiting to hear if the thorasic surgeon can operate, and waiting on appointment with oncologist to get my programme for chemo, can't get rads as it would cross over my previous rads. I know its the waiting that's hard, I know I shouldn't google anything xxx

Hi Pauline

Hope you get more detail soon.  Good luck with everything.

I am still waiting for the meeting with orncologist.  Have chased every day this week.  Made the mistake of assuming everything would happen at once now diagnosed but not the case yet.

I'm a bit more scared than I like to admit.

All the best

Nick

Hi Nick that's the same as me. Diagnosis then just the waiting game, that's why I'm scared, because they just Gave me the bad news then I left, they said I would get an app with oncology to discuss chemo, then nothing for over a week seems like a month  but I'm imagining the worst,. All the best for you,I hope you get your app through soon,  and thank you for taking time to answer xxx

All the best pauline

Hi.  Know how you feel.  In my case thought it was a sports injury.  Had been to the doctors twice over a six month period as wasn't improving.  Eventually had a CT scan and the specialist said that the way it had fractured the bone and the shape of it meant he was 95% sure it was cancer.  Because it is an uncommon one it then took seven weeks and 3 biopsies to confirm the diagnosis.  Every Friday at 6pm I have had results night and it has always been the option of a rotten one and a treatable one.  Had final results last week and was told that would hear from oncologist this week and radiotherapy would start the week after in all likelihood.  Have heard nothing.

Sadly have read too much from the internet so am now concerned about it progressing to the more common and untreatable one.  Looking at the percentage figures, this is likely over the next few years.

Sorry to ramble.  It is all scary.  

Lost my temper with a sports club today as they wanted medical evidence to cancel my membership from renewal (due 1st July) as I should have told them in May.  Told them I didn't want to pass my medical records to them as they were personal.  I had to escalate it through three different people and ended up saying that more than happy for them to sue me as think it would do more damage to them than me if it hit the press.  They backed down but it left me absolutely shattered.  To be honest I would normally have just sent them the specialist letter but wasn't in the mood for such trivia.  My work colleague did say that I kept a very level tone although she also said that she was glad not to be on the receiving end!

Hope you get your appointment soon.  Best wishes.  Nick

So sorry your having such a hard time, hopefully we hear soon, once we know whats going to happen at least we will have some control back and a plan of action, let's know how you get on. 

All the best

Pauline xx