Hi TiaViolet,

I am so sorry that you find yourself here. It is always difficult to accept that we are all clear. Some people deal with it better than others.

 If you only had your surgery in March, I would hope that you are still clear. I presume that you see your surgeon regularly to check that you have no further regrowth?

I have had two primary cancers within a year of each other. The first operation did not have a clear margin although my surgeon assured me that he had realised this during my surgery and had taken more, which wouldn’t have showed up in pathology.

I have recently stopped taking Letrozole and instead of being happy to have finished with the side-effects, I now feel as if my safety blanket has been whipped from under me.

I don’t think that I will ever get over the fear of re-growth, but it is helpful to have faith in your surgeon – I changed mine after the first year. I am coping with the possibility better now, but that’s not to say what I’d be like if the situation arose again.

Fortunately you can live with only one kidney if it did recur, but I trust that it won’t.

We are always here to talk to and do our best to support each other along our path. Do come back and let us know how you get on.

Kind regards,

Jolamine xx

Hi I'm kind of in the same boat , I have kidney cancer and they are removing the wholeleft one on the 14 th June , as it's grown upwards and can't get it through keyhole, I'm struggle with the fear as you are , but you are never alone  shout if you need something , I have no answers but the deep dread I think is normal to all who suffer with that fear   X

Hi Walnuts,

I'm sorry to hear that you are going through this too. The sentiments you mention are perfectly normal. I don't know how long you've been waiting for surgery, but it's not too far off now.

I am hoping and praying for a good outcome and will be thinking of you on 14th June. Keep in touch. We are happy to try and support you through this awful hurdle.

Kind regards,

Jolamine xx

Many thanks for you kind words , im also here if you need a chat, im a stubborn person so will fight to stay here, I gave 6 kids, two grandchildren and foster children who need me to be here to annoy them lol , shout or message if anything I can help with 

Hi Walnuts,

This is one time when stubbornness can be a blessing. You have so much to live for that you cannot give up.

With all those children, foster children and grandchildren you should be well looked after. It will be difficult to accept such attention when it has probably been you looking after all of them for many years. However, it is your turn to be cosseted for a while so take all the care, help and attention that you can get.

I know that waiting for surgery and your diagnosis can be a scary time. Try to keep yourself busy in the hope of taking your mind off what lies ahead. I do hope that all goes well on 14th and will be looking forward to your updates.

Take care.

Jolamine xx