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Not coping with taking my letrozole medication after breast

Eggy
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omg where do I begin had a lumpectomy 13/12/16 results 2 weeks later back in 10/1/17 for second operation again 2 weeks later back for results back in 7/2/17 for mastectomy all this was fine  it was like a rollercoaster didn't have time to think about myself only how my family would cope etc then a month on I started taking letrozole and bang I have never felt so unwell is this normal? Has anyone else experienced awful side effects from this tablet?

Parents
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    Hi, I have been taking letrozole for just over a year now. I didn't really have any side effects at first. The last few months my knees have become very stiff. Also during the night my knees seem to be burning which makes me very restless and unable to sleep. I am back to see the oncologist next month so I will ask what can I do about these aching and restless legs, if anything?

    The other thing is which I am not sure if connected is my toe nails are terrible, they haven't recovered from the chemotherapy.

    What affects are you feeling?

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    Hi, I have been taking letrozole for just over a year now. I didn't really have any side effects at first. The last few months my knees have become very stiff. Also during the night my knees seem to be burning which makes me very restless and unable to sleep. I am back to see the oncologist next month so I will ask what can I do about these aching and restless legs, if anything?

    The other thing is which I am not sure if connected is my toe nails are terrible, they haven't recovered from the chemotherapy.

    What affects are you feeling?

Children
  • Offline in reply to Audrey

    Hi Audrey thanks so much for replying I'm experiencing very swollen feet & hands a terrible metal taste in my mouth & very tired but unable to sleep properly & awful sweats

  • Offline in reply to Eggy

    Hi, you are very welcome. I do get very hot during the night too. Have you mentioned it to your oncologist? 

    Not nice side effects at all, I don't know if there is any other options for us. I think I will be afraid to stop tablet.

    Do you have any problems with weight gain? I just can't loose any weight at all.

  • Offline in reply to Audrey
    Hi ,I feel similar symptoms,I have been taking letrozole for 2 years and I have terrible pains in my bones ,night sweats , restless legs and last year my toes nails went brown , at work some days Iam exhausted by the afternoon ,i am afraid to change tablets as letrozole is supposed to be a good tablet .
  • Offline in reply to Eggy

    Hi Aggy

    I stared to take letrozole mid January  this year !!

    I had lots side effects first two months or so and still have some now

    Most I had pain in the legs and ankles!! Surgical stockings help

    I start wearing in the morning and take off before go to bed that really helped

    First few weeks I had sleeping trouble as well 

    Effected short memory too

    I still have sometimes pain in knees but leggs and feet are ok now

    Give about two months if it doesn't settle then ring the nurse at breast clinic they might change to different tablets

    Jeet 123

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