Bowel cancer

Hi, I had an op 3 weeks ago today to remove a tumour from my sigmoid colon. The op went well and I am making a good recovery. Now waiting to hear about chemo. 

If you are offered screening for bowel cancer please take the tests which could save your life! I am only 56 and the diagnosis came as a complete shock. It can affect people of all ages but can be treated if caught early enough. I remain positive and hopeful that I can recover. 

Please say hello if you are also living with bowel cancer. 

Jo x

Parents
  • Hi Jo,

    Like you I've had recently had a tumour removed from my sigmoid colon and am waiting to start chemo next week. Also came as a shock to me- no major symptoms, no family history and mainly the fact that I'm only 23...doctors can't believe it. Trying to remain positive! Best of wishes for you in your journey :)

    x

  • Hi rmstyles04, 

    23 is very young to be diagnosed. Thank goodness it was detected rather than you being told you are too young. Have you seen the campaign #nevertooyoung? 

    I hope you made a good recovery from the surgery and I wish you all the best with the chemo. What are you going to receive? 

    Jo

  • Hi Jo I am just starting my journey. Colonoscopy revealed 5cm high grade glandular dysplasia. I have CT scan booked for Wednesday to see if it's spread. I am so upset and can't seem to find a positive attitude. Telling family and friends has been the worse. Just found this forum this evening and must say it has made me feel slightly better. Thank you xx
  • Hi JackieJ, When I went for the sigmoidoscopy I really though they were going to tell me I had internal piles! When they said it was a tumour I felt like I had entered some sort of surreal world and it felt like they weren't even talking about me! My partner was there when I was given the diagnosis so knew straight away but then I had to tell my mum who is 86 and who lives 120 miles away. I ended up just blurting it out on the phone to her and I cried uncontrollably! After that I had to tell my 24 year old son which was equally as painful. I decided to be very open and started posting my journey publically on Facebook where I try to give a balanced account of life with cancer. My page is www.facebook.com/warpywefterjo The CT scan is OK. You have to drink a load of aniseed flavoured liquid and i was also injected during the scan to highlight all my important bits. It felt weird but didn't hurt. The actual scan took 5 mins. I don't know what to advise about positive attitude. I am told I have one. I use humour a lot. I love life and try to make the most of every day. I hope things go well for you. Let me know how things go. Jo
Reply
  • Hi JackieJ, When I went for the sigmoidoscopy I really though they were going to tell me I had internal piles! When they said it was a tumour I felt like I had entered some sort of surreal world and it felt like they weren't even talking about me! My partner was there when I was given the diagnosis so knew straight away but then I had to tell my mum who is 86 and who lives 120 miles away. I ended up just blurting it out on the phone to her and I cried uncontrollably! After that I had to tell my 24 year old son which was equally as painful. I decided to be very open and started posting my journey publically on Facebook where I try to give a balanced account of life with cancer. My page is www.facebook.com/warpywefterjo The CT scan is OK. You have to drink a load of aniseed flavoured liquid and i was also injected during the scan to highlight all my important bits. It felt weird but didn't hurt. The actual scan took 5 mins. I don't know what to advise about positive attitude. I am told I have one. I use humour a lot. I love life and try to make the most of every day. I hope things go well for you. Let me know how things go. Jo
Children
  • I've just been diagnosed with a tumour in my large bowel. CT scan and MRI show no spread. Surgery this week and I will have a temporary bag. Histology of tumour and lymph nodes after 10 days will determine if Chemo is required. Like you it came as a total shock. Was expecting IBS.

  • Hi spc 

    yes I was shocked to receive the diagnosis! I thought I just had piles! 

    My surgery was really successful and although I  was marked up for a bag prior to the surgery I didn't need one as my surgeon managed to resect my bowel I spent 6 days in hospital and 6 weeks on I now feel great. 

    I hope your op and recovery go as well as mine did. 

  • Morning all, I had my flexi sig at the end of April & too expected piles/IBS!! It was confirmed in May that I have colorectal cancer and I go in for my op next Tuesday (13/6). I am a little apprehensive but am trying to stay positive and not worry on what MIGHT happen. My consultant has said I my need a temp bag, and if that's the case, we will deal with it. Histology will determine if I need chemo, but the MRI has shown no spread so fingers crossed.
  • Hi Seasider Hope it goes as well as mine did. I am now waiting for an appointment with an oncologist to discuss the need( or not) for chemo. Jo

  • Hi Jo, thank you for the good wishes.  Once I am back home I will let you know how I've got on.

    good luck with the Oncologist

    Cath

  • Hello all, my little story is I was being treated for piles - blood in stool often, no other symptoms, but as a fitness fanatic I was running in 2016 and needed the loo after a mile jog. Went back to gp and got referred for check for piles, found a tumour in bowel. Usual scans etc staged t3 n2 m0. Five weeks chemoradio then surgery in October. Informed no signs of cancer and didn't need further chemo etc. Have a temporary stoma and today told after dye test that bowel is healed so hope for reversal soon.

    upshot if all of this is that folk shouldn't be fobbed off if you feel something is not right, that treatment these days is amazing and we can survive this. For further information I'm doing video blogs about my experience - it's on YouTube titles Beating Bowel Cancef with Fitness. Hope it's useful. Love to all.

  • Hi all best wishes to all of you, I'd like to try to give something positive to you, and share some things that I believe helped me.

    My story, I am now 4 years 9 months since having a diagnosis of Bowel cancer with mets on my lungs, I was 49 and it was a horrible shock when I found out. I had operations on my bowel & both lungs & 2 courses of chemo with Bevacizumab, my last operation was in December 2013. Currently I have no detectable signs of cancer and hoping it stays that way.

    I tried to look at all the ways I could influence the outcome.

    I tried to find the best place to get treated (NHS), having confidence in the medical team looking after you is really important & you have a right to choose.

    I had low Vitamin D before my diagnosis (like Robunknownuser above) I have been taking vitamin D ever since. I'd advise asking your medical team if it is ok for you to take as there are studies that show that Vitamin D is helpful both in treatment of & prevention of bowel cancer you can google them.

    I think trying to be positive really helped, I read a book called "How the mind can heal the body" it was a bit ying & yang in places but it had lots of helpful ways to try and focus your thoughts & ways to deal with how you maybe feeling.

    I made time to try to do things I enjoyed with family & friends

    I changed my diet, I now eat many more vegetables, much less red meat & less processed food, reduced the amount of alchohol I drink.

    I increased the amount of excercise I take & used excercise to help with recovery after operations.

    I really feel these things helped me so I hope some of this is useful to you

    take care

     

     

     

  • Hi hope have recoverd well .do you mind saying how long you had a bag for or do you still have it .how long was you in hospital .are you off work .sorry all questions .im in limbo waiting results of ct scan 

  • Offline in reply to Jon

    Hi 

     

    Sorry to jump on your post - i was just wondering if anyone had been diagnosed whilst having normal blood tests? 

     

    My Dr is reluctant to refer me due to my CRP and CA125 levels being low - at 9 & 5 which is great but ive been so poorly with Blood, bloating, stomach upsets ( 7-10 x a day) abdominal pain and a dodgy left hip. Im 35 and being told its likely just to be IBS but im worried.

     

    Thanks

     

    Sally x