Am I sleeping too frequently?

Hi,

I was diagnosed with Grade III Anaplastic Gemistocytic Astrocytoma on December 7th 2016 and had surgery on December 9th 2016 to have it all removed.

Was told only afew cells remained which hopefully radiotherapy and chemotherapy would remove. It's been a month since finishing my six week radiotherapy and I'll be starting Chemotherapy on the 24th April 2017.

Once thing that I really am finding concerning is my increasing fatigue, I would have expected the worst during treatment but it seem's that my tiredness is actually getting more frequent to the point of needing to sleep as early as 3pm only to wake up around 9pm then need to sleep to the morning.

Each time I've slept I've not felt any better and still remaining tired. I've not needed to be on steroids since after surgery and my specialist nurses refuse to allow me any of the anti-fatigue tablets such as modafinil because of "side-effects".

What I would like to know is if you are unfortunetely suffering from cancer as well, is the persistant hit of fatigue just as bad for you?

  • Hi Graham,

    I don;t have the same cancer as you,. I was diagnosed with breast cancer in 2010. At the time of my diagnosis I was totally exhausted. There were no particular times that I slept, I just did so at every opportunity. Whether it was in a car, aeroplane, doctor's consulting room, theatre or anywhere else, I would just doze off.

    As I started taking medication for my cancer, pain, etc, I became even sleepier. It is only recently, as I have reduced some of my medication that I am feeling less exhausted. I am still tired and can occasionally drop off watching television, at a lecture or in the car.

    They say that life goes in 7 year cycles, so I am hoping to move into a more wakeful spell. I didn't have radiotherapy or chemo, but I did have two primary cancers - the second one almost a year to the day that the first was diagnosed. I understand that these treatments can tire you too.

    Have you spoken to your cancer care team about this and did they have any suggestions that might help you?

    I am sure that others will come along who have also suffered and may be able to give you some advice. The 'perdistant hit' of extreme fatigue is no joke and can totally overrule your life.

    I do hope that you can overcome this soon.

    Kind regards,

    Jolamine

  • Hi Graham,

    Like Jolamine, I didnt have the sam cancer as you but did have radiotherapy for prostate cancer. But I di suffer from tiredness due to the radiotherapy and it got worse after about four weeks after finishing treatment. I understand this is often the case. Plus the hormone therapy cause a certain amount of fatigue. It should start to improve in a few weeks or so but do mention it to your medical team.

    Best wishes for a good recovery, Brian.

     

  • Graham

    welcome to the forum

    i had a head a neck cancer that involved 6 8 hour chemo session am 30 Tomotherapy sessions all done over 6 weeks

    i am now 2.5 years post treatment

    the fatigue kicks in slowly but it last a long time

    i finished my treatment mid August and started to get back to part time work late October. Even though I was only doing 3 half days a week when I cam home at 3pm I would sleep for 4 hours and had to get my wife to wake my up a) to see my family and have dinner and b) otherwise I would sleep all the way through

    even now I sleep like a baby, and when I over do things it catches up with me and my body says sleep

    whatever cancer treatment we go through although I had a massive desire to return to what I called normal, my wife reminded me of two things

    1. That my body had been through a lot and it's telling my to slow down a bit whilst it tries to repair itself

    2. That I am getting older and that I am no Peter Pan and things just take time

    i was 51 when I was diagnosed, I played 11 and 5 a side football, played golf and squash too ..... now I just play a sedate game of 5-aside, I'm not fit enough to play squash and I sleep well after a game of golf

    its a case of listening to your body in those early days, everyone is different,

    Enjoy life but give yourself time to rest

    let us know how you get on

    vatch

  • Thank you to all who replied. It gives me some hope it's eventually going to go.