What to expect!

Hi i was told a couple days ago that i have a 5cm complex cyst in my left kidney that needs removing..they have booked me in for next month at a hospital with specialist cancer care to either remove just the cyst or the whole kidney..im worried and confused..the doctor wouldnt tell me it was cancer as of course they wont know until they take it out, did send me off with an 'understanding kidney cancer' booklet so i assume thats what the doc thinks it is? Anyway i am full of questions as was too shocked to ask the doc at the time! Im interested in hearing of anyone who has been in this situation so i can know what to expect and get my head round it all!  

Thank you for your time

Tess, 30 kent

 

  • Hi Tess,

    Welcome to the Forum, although sorry that you find yourself here. This is a fantastic resource for all of us in those desperate moments and you will find it helpful to have the support of the tremendous bunch of people who subscribe to this site.

    It can be so difficult to take in your diagnosis at first that you cannot be expected to remember to ask all the questions you want to or even to take in all the information you've been bombarded with.

    I find that it is best to write down any question that comes to me between appointments. This way I make sure that I don't forget to ask anything. I also take my husband with me and he writes down the answers.  This works well for me and I know that many others do the same. My surgeon was very patient with me and got to expect a raft of questions at almost every visit. I would always advise you to take someone with you to your visits.

    Have you been allocated a cancer nurse? If so, they can also be very helpful in answering any questions you may have before you go in for surgery - just give them a phone.. If you still have more questions, give the nurses on this site a phone. It is a Freephone number and they are very helpful.

    I hope that all goes well next month. Do keep in touch and we will do what we can to support you.

    kind regards,

    Jolamine xx

  • Thank you so much for your reply! I already feel better to know there is support out there. I will def take your advice on writing questions down and answers, think thats a brilliant idea..

    My mother died of cervical cancer so as soon as i heard the word i just freaked! I always think there is only one ending but i know i am wrong in thinking that! 

    I have so many questions so im sure the surgeon will love me lol 

    Tess xx

  • Hi Tess,

    My mother also died with cancer, so I too freaked when I was diagnosed. That was 20 years ago and she had a 12 year battle. Thankfully treatments have improved a lot since then.

    There is not just the one ending to this tale. Treatments have moved on a lot and you can now meet people who have had cancer for years but manage to live a normal life.

    I am glad to hear that you are going to make a list of your questions. If you have someone you can take along with you it can be helpful to have them with you. Having two of you there  can be helpful to pick up on questions that arise during your conversation. They can also help to remember what the replies are, as I don't know about you, but my brain used to go to mush at these appointments.

    Take care and remember that we stand beside you all the way on your cancer journey.

    Kind regards,

    Jolamine xx