TCC delayed treatment.

My husband was diagnosed with Transitional Cell Carcinoma of the kidney on 20th Dec 2016. CT scans showed it was still contained and he was booked in for an op on 9th Feb - he was told this would be a cure, however when they went in laparoscopically they found the kidney had fused to a main artery and couldn't be removed. He woke up to find he wasn't cured and was told he was now palliative. His follow up scan has since shown that the lymph nodes on one side of his neck now have TCC too and there are no drugs to help him other than perhaps a course of chemotherapy - his prognosis is six to eight months. We and our four children (aged late twenties to early thirties) are devastated and he's making plans for when he's not here.  

If the original scan didn't show spread and the TCC was contained inside the kidney how did it spread so fast? We had to wait while one consultant took his three week annual leave before two consultants could attempt the op and now we are wondering why the op couldn't have been done by the one consultant who was there with a registrar - rather than wait for six weeks before any surgery was attempted. We feel this delay may have cost him his life and he STILL hasn't seen an oncologist at all but has an appointment with one on 14th March. We just don't feel they have (and still not) acted fast enough at all. He now has cancer that is spreading rapidly and they're just dawdling with treatment. 

This is so worrying because we thought it would be treated with urgency and we feel now he has no chance at all! 

  • Welcome to Cancer Chat, Raafley2008. I'm really sorry to read of your husband's diagnosis; what a worrying time for you both.

    I noticed you'd not received a reply yet and wanted to suggest that you give our cancer nurses a call to talk through some of the questions you have as a result of your husband's treatment. They're just on the other end of the phone, on 0808 800 4040, or you can email them if you prefer: Talk to our information nurses

    You're also very welcome to take a look around the forum - we have quite a few members who are caring for someone with cancer, and will be able to relate to the feelings you describe. 

    I hope you're able to get more answers from your appointment on the 14th, do let us know how you get on if you are able to. We're thinking of you.

    Best wishes,

    Helen

    Cancer Chat Moderator