Fear of the unknown.....

I was diagnosed with Adenoid cystic carcinoma in my right salivary gland at the beginning of December 2016. What a roller coaster this is! It just seems that every appointment I go to more information is given and it's more to take in. It's getting so overwhelming! I'm quite a positive person but this last week I'm feeling the pressure and reality of it all.

I had surgery to remove the tumor on the 12th Jan and had to go back to hospital 3 weeks after with a blood clot and infection. I have to have Radiotherapy for 6 and a half weeks which starts on 7th March and have my mask fitting on 21st Feb. 

I'm only 32 and although I have so much support from my family and friends, I have joined here for the support from people who are in a similar boat to me and understand a bit more....if that makes sense.

I have a rare from of cancer so it's difficult to find someone in a exactly the same boat but it's more the fear of the unknown that's scary. 

Anyway I've babbled on far too long. Just if anyone has or is currently or even about to go through radiotherapy like myself and want to chat I'd love that.

Vicki

(Yorkshire)

 

  • Hello Vikki,

    A big welcome to Cancer Chat. You've probably read a lot already about adenoid cystic carcinoma - we also have some information on our website on salivary gland cancer which you can read here which includes a section specifically on radiotherapy for salivary gland cancer. It is normal to feel overwhelmed by the amount of information you are being given at every appointment and if you ever have any questions don't hesitate to ring our nurses on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm.

    I hope your radiotherapy goes well and that you will meet others here who are currently going through this. As you rightly say, having support from others who are in exactly the same boat can truly help. Even if they don't have exactly the same type of cancer as you, they will understand your feelings and the fear of the unknown that you describe. Hopefully you will also get to talk to others here who have had radiotherapy or who are about to start it too.

    Best wishes,

    Lucie, Cancer Chat Moderator

     

     

  • Hi tori

    welcome to the forum and well done so far

    you are in the right place to chat about what you are going through and get some advice and tips on the radio therapy you are about to undertake

    at present you are being bombarded with facts about your condition, over time this will go in, but now I guess you are trying to deal with it all

    i myself am about 2.5 years post treatment for a tongue based cancer that appeared as a secondary in a swollen lymph gland .... no primary found

    i had 30 sessions of Tomotherapy, a different type of radiotherapy

    You babble away as I am sure you have loads of questions

    vatch