We have some information on this page about T-cell lymphoma of the skin. It includes a section on mycosis fungoides and Sezary syndrome which I hope will be useful to you.
I hope you will find others here who have this type of skin lymphoma. I am not sure if this is exactly what you have but we've had several threads on the forum in the past on Mycosis Fungoides as for example this one.
Most recently, there was a thread posted by [@ctcl] which you can read here and which you are welcome to respond to if you wish.
Our nurses are also available on this free number if you live in the UK: 0808 800 4040, Monday to Friday from 9am to 5pm so don't hesitate to give them a call if you have any questions about mycosis skin lymphoma.
I hope you will get talking here with others who have had a similar diagnosis.
