Given All Clear But Now Told I Have Colon Cancer

I underwent scans and tests last year due to rectal bleeding and was finally told that I had a large polyp that needed removing. I was also told that I didn't have cancer and that the removal of the polyp would be straight forward. There was a very slight chance that once removed the polyp could show as being cancerous underneath but the consultant really wasn't concerned.  Polyp was removed 2 weeks ago and I got a phone call yesterday calling me in to see the consultant this morning. The polyp showed that I DO have cancer.  My head is in a spin. It's taken 10 months to get to this  point.  The consultant said there is chance the cancer was all taken away with the polyp and as no cancer was visible on the scans I had previously, he didn't think it has spread. However, I couldn't manage an MRI as I had a panic attack and he feels that the MRI would have shown something that the scans didn't pick up.  I now have to try and have an MRI to see if the cancer has spread to my glands. I'm assuming this will mean surgery although he said as I am overweight this carried a risk anyway.   I kept asking if it was all treatable and he nodded but then came up with the percetage that isn't treatable so I now feel awful. If anyone has been in this situation of being told they didn't have cancer and then found they did or if anyone can offer advise I'd be so very grateful. 

  • Hi low hop your ok am waiting for another Bowel scenting I had one 15 months ago am so freaking out that they missed it and now I've got invasive cancer sorry for going on 

  • Hi Lynne 

    My mum was diagnosed with bowel cancer just before the first lockdown. She was told multiple times she didn't have cancer, she had blood in her stools that were tested twice, she had multiple blood tests, and she was told cancer wasent even being considered, she was suspecting crohns. She went for a routine colonoscopy purely due to her persistence, she kept going back to the gp as she new something wasent right. During the colonoscopy they found a tumour in her small bowel and immediately told her they thought it was cancer. My mum obviously said straight away but I've been told I've not got cancer, they screen my stools twice and did multiple blood tests, the consultant then said sometimes it doesn't always show up and it does get missed. She had a biopsy which confirmed cancer and was told she would be put on the list for surgery. Operations were getting cancelled left and right due to covid, so were really surprised when 6weeks later she was one of the first to be called in for her operation. They found a small growing cancerous tumour in her small bowel and managed to remove the whole thing and she didn't have to have a stoma fitted which she was really concerned about. I no its easier said than done but try not to worry x

  • This all sounds very familiar. I think we do know our own bodies and it's frustrating when no one listens to us. I first posted this 3 years ago. My story is almost the same as your mums. I have had tests every year since and so far everything has come back clear. I am due to be signed off in 6 months if nothing shows on my next set of scans. It's left me with terrible health anxiety. I have no faith in my GP since she didn't send me anywhere initially when I went to see her with my symptoms and she continues to be dismissive of anything I go to see her with. I've been lucky I know but It's all been a struggle to deal with I.e. waiting for results and phone calls. Your mum will probably have the same yearly tests now and hopefully everything will be ok. It's such a life changing thing and I do understand how worried you must be. 

  • It was the same with my mum when she went to the gp, weve had the same gp since we were babies but our dr wasent there it was a locum she kept seeing who just kept dismissing her and sending her away. She said she really started to get persistent when she had to be within close range of a toilet everytime she ate something, and the pain she was getting, she new something wasent right. Looking back my mum suffered with severe night sweats for years, and before her diagnosis she lost a huge amount of weight, its only now looking back at photos I can see she really did look poorly.  Thank god she was so persistent and didn't give up as it could of been a very different story. 

     

    I'm really glad to hear your cancer free now and everything worked out for you x

  • I've been worrying myself because of constant trips to the toilet and stomach pain. I haven't felt great but I know some diverticulitis was found so I'm thinking it's that. The thought of having to start up with it all again is terrifying me. I didn't have pain when I first had symptoms, I just saw blood. That was all. I do have a colonoscopy due so I guess all will become clear. It was due in April but hasn't been done yet due to covid. 
     

    My previous doctor was wonderful but since moving house my doctor now is really not approachable. I think she thinks I'm being a nuisance and I'm frightened to go. It shouldn't be like this should it? I hope you're mum is now cancer free and can move on with her life. I know it's not easy. Everyone thinks you should be happy but unfortunately it takes a lot out of us and it's hard to think everything will be fine. 

  • Pain was one of the last symptoms my mum got, I'm sure you are fine and it will turn out to be diverticulitis like u said or even ibs. Cancer can take alot out of you and you have to find your new normal, you are bound to be on edge and worrying when you get symptoms but remember there is a whole list of things that it could be. I to suffer from health anxiety it all started when my mum got diagnosed and then the covid lockdown so I no how utterly crippling it can be, I've had symptoms of things I was convinced I had as I was sure they were to sevre to just be anxiety. Its literally taken over my life so I can emphasis with you massively.

     

    Have u thought about moving doctors? We recently moved and had to move doctors also as i now live over 100miles away from my mum, the doctors we registered with im not going to lie were horrific, you couldn't even speak to a gp via telephone never mind get a face to face appointment. You had to ring up and leave a message with the receptionist who would then tell the dr and then the dr would give them a message to ring back and tell you if you queried what you were being told the answer you got was 'I'm not medically trained but you can call back in the morning and leave a message for the dr' so I thought sod this and moved to a different surgery which have turned out to be fantastic, they are still doing face to face appointments for people who need them and they genuinely put there patients first, I no I'm so lucky to have found a surgery like this one. No one should feel there gp is unapproachable, your bound to have anxiety regarding your health and this should be taken into account and they should order extra testing etc just to put your mind at rest. 

    I think my mum thought after having cancer and surviving my dad would appreciate her more and not take her for granted but thats not been the case, so I think having had cancer is making her reevaluate her entire life and I can sense big changes coming, but she deserves to be happy and she deserves to live the life she wants to. 

    I wish you every luck with your testing and really hope everything comes back OK for you, ill have my fingers crossed x

  • I do suffer with IBS too.. I know it can be other things but my mad mind tells me otherwise in the middle of the night! I keep telling myself that bloods and scans were clear in July. I'd like to move house to get away from my current GP but that's not been easy as viewing anywhere has been out of the question during lockdown and we don't really want people looking round our house either. We've had no one here since March other that our daughter's family who we formed a bubble with. I completely understand your health concerns. I read something recently regarding family members of someone being diagnosed with cancer becoming worried by their own health. I think it's a normal reaction but it's frightening all the same.