Given All Clear But Now Told I Have Colon Cancer

I underwent scans and tests last year due to rectal bleeding and was finally told that I had a large polyp that needed removing. I was also told that I didn't have cancer and that the removal of the polyp would be straight forward. There was a very slight chance that once removed the polyp could show as being cancerous underneath but the consultant really wasn't concerned.  Polyp was removed 2 weeks ago and I got a phone call yesterday calling me in to see the consultant this morning. The polyp showed that I DO have cancer.  My head is in a spin. It's taken 10 months to get to this  point.  The consultant said there is chance the cancer was all taken away with the polyp and as no cancer was visible on the scans I had previously, he didn't think it has spread. However, I couldn't manage an MRI as I had a panic attack and he feels that the MRI would have shown something that the scans didn't pick up.  I now have to try and have an MRI to see if the cancer has spread to my glands. I'm assuming this will mean surgery although he said as I am overweight this carried a risk anyway.   I kept asking if it was all treatable and he nodded but then came up with the percetage that isn't treatable so I now feel awful. If anyone has been in this situation of being told they didn't have cancer and then found they did or if anyone can offer advise I'd be so very grateful. 

  • I know they are doing their best with hospital appointments and giving proper social distancing which is good. I wish I could give you advice about dealing with anxiety. I can't.. I have no answers. Mine came on when I was going through the cancer tests and it's remained with me. If anything is worrying me my anxiety now shoots through the roof and I be get totally taken over by it. I cannot watch TV or concentrate on anything. We live by the sea and I find sitting watching the waves calms me but no chance of doing that for the foreseeable! I've never asked my GP for medication for anxiety as I do not want to become hooked on anything. I think I'm stuck with it! 

  • It's so hard isn't it but glad to hear the waves can help you during the more anxious times. It's totally understandable that it came on during those worrying times and I'm sorry to hear it has stuck with you. Mine came on when I had an ectopic pregnancy and like you said it has kinda stuck with me since then. How are you holding up during all this uncertainty? Have you got everything you need? 

  • Yes we have managed well. My hubby is here with me. We manage to get food deliveries and we walk the dog at  at the back of the house which backs onto the sand dunes, so it could be worse. I am quite terrified of the virus though and we are strictly sticking to all the guidelines. I hope you are all ok too. Must be difficult with young children. 
     

    I think with anxiety, how both you and I have ended up suffering with it is quite normal but once anyone has it, it is with us forever and we have to try and manage it. I absolutely dread it coming on. I'm sure you feel the same. 
     

    Please let me know when you have had your scan. I've got my fingers crossed for you 

  • That sounds lovely with the sand dunes so nearby and yes I don't blame you, you must keep safe. Yes very difficult with young children but I get them doing lots of crafts and out in the garden most days so filling up our time.

    Of course I will it's tomorrow at 12. I've got to starve myself for six hours before and go with a full bladder. Sounds like they are being very thorough. I'm very nervous though. I'm sure I've lost more weight but I got so scared weighing myself and having panic attacks when it went down my hubby had to hide the scales as they were making me worse. I know people who have told me they lost weight because of anxiety so I'm hoping it's down to either that or something that's not serious and easily treatable but who knows.

  • Hi lynne888 Just popping on to let you know how it went yesterday. It was surreal having a hospital appointment as it was completely empty in the part I had my scan. I asked the sonographer if she could tell me the results on the day and she said no and the Dr would get them and I would know within 10 days. Well long story short at the end of the scan she told me it was all ok. I was in shock (asked her if it was all ok and she said yes). I still need to speak to the Dr (earliest appointment I could get was Monday) but as she told me it was ok then I'm guessing nothing sinister was found. They didn't scan the bowel, like you said it's done with a camera but the organs they did scan all seem ok according to the sonographer and I'm pretty sure she wouldn't have said anything if she had found anything. Hope you are keeping well.
  • Hi Lynne888 I'm not sure if that posted to you or me but I wanted to let you know my scan went well please see my other post .

  • That's good news! I hope you feel a little better now. I don't think they would tell you everything was ok if it wasn't. As far as the bowel is concerned, you are not presenting with symptoms for bowel problems so they probably won't do a colonoscopy, and believe me if you don't need one, don't have one! So pleased for you! 

  • Thank you. I do feel a little better but I am still concerned about the weight loss for no reason. It seems very odd when I don't normally lose weight without trying to diet etc. I have a follow up Dr appointment on Monday to discuss scan results. Hoping he can maybe shed some light on weight loss or that it is down to anxiety.

    With the bowel I think it freaks me out seeing rectal bleeding even tho they have seen piles when I've been to the GP in the past. That stems from my ectopic pregnancy I'm sure, blood terrifies me. 

  • I have had piles since having my daughter many years ago. They are prolematic on and off.  Realy not anything to concern yourself with honestly.  Have you noticed you have eaten less or feel like you dont want food? The anxiety and worry may have made you eat less than you think hence the weight loss.  See what the doctor says when you go back on Monday and take it from there. All of these negative results are a good thing. 

  • I think my piles were made worse by my daughter as when I was pregnant with her it was the pain from those that landed me in hospital not the labour pains ‍♀️. The midwife found it funny as she told me that they would be the least of my concerns when the real contractions kick in. I'm not sure they have ever really gone away sjnce having her and she's now two.

    Yes definitely eaten less (especially over the past month while waiting for my scan even tho I've tried to eat). I used to have huge meals but I often struggle to finish them now. I also get full very quickly and sometimes feel sick eating but I think that's because I'm more aware of trying to eat and finish my meals off. Yes I will thank you so much and thank you for taking the time to talk to me. It really helps.