Hi my name is Janet, I am 65 years old and I've recently been diagnosed with Primary Myelofibrosis. It Is the rarest of the 3 MPNs. As with a lot of sufferers my diagnosis was discovered after tests for an enlarged spleen. I am not having any treatment at the moment as I don't have any major symptoms. I think that mentally that is the worse thing about this disease as it brings it home that it is incurable. To be diagnosed with MF and walk out of the consultants office without any treatment is hard to get your head around.

Anyway I would love to chat with anyone with MF.