Cisplatin & 5FU For Tongue Cancer

Hi all,

a week ago i was diagnosed with terminal tongue cancer.My specialist has recommended intense chemo using Cisplatin & 5FU to try and shrink the tumour and keep it under control for as long as possible.Just wondered if anyone has any experience with this.

Thanks for reading

  • Hello Middlingsort,

    Welcome to Cancer Chat. I am sorry to hear you have been diagnosed with tongue cancer and I hope that the treatment works well for you. You have joined the right forum to talk about tongue cancer as we have quite a few members who have been affected by it and they have discussed their diagnosis and treatment in great depth in the past. Perhaps you could also slightly edit the title of your thread to something like 'Cisplatin and 5FU for tongue cancer'? This will allow our members who have been affected by tongue cancer to spot your post immediately.

    One of our members [@Nicola2209]‍ who had tongue cancer in the past has mentioned being on Cisplatin and she may be able to advise you further and share her experience with you. She shared her story on this thread a few years ago and it became a very popular thread so don't hesitate to respond or connect with anyone you would like to hear more from.

    If you have any specific medical questions and live in the UK, our nurses are also available on this free number 0808 800 4040, Monday to Friday from 9am to 5pm.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • Hi middlingsort,

    Sorry I've not come across your post before and I'm sorry to hear of your diagnosis. How is the treatment going? As the moderator mentioned, I was on cisplatin and apart from the usual Chemo side effects I found it to be ok. 

     

    I hope you're able to keep your spirits up and are managing ok. 

     

    Nicola