endometrial cancer - diagnosed yesterday

Hi, not really sure where to start but here goes. A fortnight ago I had an ovarian cyst removed and a unilateral salpingo-oophantactomy (think that's how you spell it!) I got the call back to say they needed to see me and was not surprised when they diagnosed me with endometrial cancer. They think it is confined as the cyst and ovary were fine it was the endometrial tissue that was cancerous. Anyway I have to go back and have a hysterectomy and the other ovary removed, they'll be able to stage it then and know if I need chemo etc.this will send me into menopause but I cant have hrt as I'm only 40. I'm finding this all very difficult to cope with. I don't know if I'm mourning for the children I'll never have or the cancer I've got. I'm still not back at work from the last op and the next one is the 24th Nov. I'm supposed to return on monday but the prospect of that is just to much. I'm single, I live alone, I think i get a months full pay which I have almost used on the first op and now have the prospect of trying to manage a house on ssp. I have a sickness policy which covers just my mortgage but my cancer hopefully isn't advanced enough to claim on my decreasing mortgage cover. Its crazy.but I can't help worrying about what seems to be trivial things. I've told my family and close friends about my diagnosis they took it ok, lots of tears, I found myself comforting them, that makes me afraid to tell other people, god my head is swimming!!!

  • My Oncologist didn't give me options . She was very good and started to explain the treatment I needed . I couldn't take it in I was so shocked . however within a couple of weeks ( in fact the Monday between Christmas and New Year ) I was off to the Beatson in Glasgow for my first of four chemos - then 25 radiotherapies and three brachytherapies . Sounds a lot but honestly it was never as bad as I expected . I think the people you meet along the way just help to get you through it . I'm sure you will do great and I would do all that they suggest . God bless xxx

  • Hi Niclap,

    My results came back and I have Complex Hyperlasia Atypia. Abnormal cell means Cancer.

    Im being giving a heavy dose of hormones and been told to go on a strict no sugar diet. Then another Hysteroscopy and biopsy to see what's happening in 6 months. We might be able to have IVF and get pregnant or I might have to have a Hysterectomy.

    Spent all weekend telling family and friends. I have never cried and been so emotionally drained in my life. The difficulty was how you start the conversations off...  I chose to write some sentences down on paper and read over them before I came out and said it. I didn't wear any makeup, as when I came out of the consultants office all my mascara was running and everyone was staring. My sister came with me, so she took the information and I just let my emotions take hold. I know I have hope  right now but it was hard to be positive in that moment when they tell you it's cancer.

    i had to wait the whole day until my husband came back from work, which is where I spent the time writing some sentences and understanding more about the diet and hormones. It was difficult and although he was in shock he really took it well and just held me and told me he would do the no sugar lifestyle change with me, as he didn't think the hormones would be any use to him! We laughed, I laughed!

    so no alcohol, no sugar, no processed, no junk for the next six months. This right now is the only way to beat it and give us a chance to have a family. 

    Let me know how your op goes on 24th.

  • Hi Monka, I'm sorry to hear your news, I know that brings you no comfort but it sounds like you have one amazing husband and family and friends who'll be there to support you. On the positive side you have a chance to have a family and if they are prepared to wait they must think the prognosis is good. Its strange how people react, I've had very few tears, I think they'll probably come after the hysterectomy and staging and I know what I'm dealing with. I always kill things with humour, I think sometimes people think I'm totally inappropriate but if I can make light of it it helps other people deal with it. God I hope they don't give me the diet, no alcohol or sugar for six months, dont if I could do that lol. Stay positive pet and let me know how your getting on

     

    Nic xx

  • Hi Nic,

     

    How are you getting on?  How are you feeling?

     

    Mon x

  • Hi Mon, sorry I haven't had a chance to reply till now. Had my total hysterectomy and salpingo oopenectomy yesterday, they did it laparoscopy. I had to stay in overnight as I didn't get out of surgery till after 6 and by the time id been through recovery it was to late. I'm not going to lie it was a very emotional day but I'm feeling very positive about the future. The consultant said the surgery went well so now we wait and see if it got the cancer or if I'll need further treatment. I have to say I'm feeling better than after my last surgery and I'm pleased I had to stay in, there's no way I could have coped without the assistance of the nurses last night. And so begins recovery from this op and another few weeks of waiting.

     

    how are you doing?hows the new diet/lifestyle changes going?

    Nic xx

  • Hi Nikolai. It's awful when you are first diagnosed. You worry about everything especially work as we all rely on an income. Get in touch with McMillan cancer support. They will give you all the advice you need to support you on your journey regardless of what state etc you are at. Take care. A
  • Hiya, thank you. Work have been excellent and have agreed to pay me concessionary sick pay for the time I'm off, I also have a sickness policy with my mortgage which I'm in the process of claiming to make up my wages (they usually include, sleep-in payments, overtime, and expenses etc) that'll pay my mortgage so I'm not concerned about the pennies anymore and can concentrate on getting better. I'm feeling positive about the future and I'm ready to deal with whatever happens next. I haven't spoke to McMillan yet as I haven't felt it necessary, I have an amazing family and friends who have given me all the support I need so far. I have a gyni oncologist who says I can ring her if i need to talk about anything so far I've been okay though, I think its just 'get through the day' and tomorrow is another one. I've been on a few Facebook pages to  there is one in particular womb cancer uk run by a lovely lady named kaz, its very informative and full of positive thoughts. All in all I'm doing pretty well all things considered. Thank you for your support

    Nic xxx

  • Hi Nic,

    Hopefully you won't have to wait too long for the results and i have my fingers crossed that they got everything and that you can work on getting your life back on track. I can't imagine how your emotions are after the hysterectomy. It's easy for people to say when there not going through it that it's important that your still here. I hope that you are finding comfort in surviving and that you stay positive.

    I know that i'm having to do the diet so it gives me the best chance but it really sucks not being able to have chocolate or icecream. Most days i'm in the kitchen (as i'm now officialy been made redundant from my job), so i get up in the morning, make something with eggs. Lunch is usually a salad with avacado, infact Avacado is my new chocolate. I pretty much have it with every meal. The diet is no processed stuff, white sugars, pasta or breads. Small amounts of carbohydrates with my meals. For example a 1/4 of a baked potatoe with Ham salad and yes you've guessed it Avacado!!!! It's not all bad. I did go out last night with friends and had a steak with Kale, pomegrate and hazlenut salad and broccoli. I also had a large glass of red wine. I've given up all sauces, ketchup, salad cream, mayonaise, dressings, unless i make them from scratch myself. Which does take alot of time so i don't do this very often. 

    I'm now taking the progesterone drug which is called Utovlan (norethisterone). I have to take 5mg 3 times a day for 21 days, then break for 7. I'm on day 3 of taking the tablets. Bleeding has stopped so i feel great (although i'm still carrying a large duffle bag of all different sized sanitary towels just in case). I am having some slight pain in my lower abdomen like cramps. My GP has prescribed me Paracetamon, Codine and Metfamic acid to manage the pain which apparantly i can take all three pain meds togeather. I'm not looking forward to the 7 days of heavy periods and pain. But there is nothing else for me to do just keep going and hope that it works.

    I've also decided to start seeing a councillor so i can work on some stuff. Trying to keep positive and do everything i can to stay that way.

    Let me know how your getting on. Take care of yourself

    Mon x

  • Hi Mon, I'm pleased to see your getting to grips with the diet and meds, it'll be like second nature in a few weeks time, I'm also pleased to see your feeling a bit better within yourself and your getting some support to work through some things, take everything they can give you as its your bed chance of getting through all of this as unscathed as possible. I'm pretty much ok after the hysterectomy, I had to stay I hospital overnight, but I actually feel better than after the last surgery and continue to be the eternal optimistic. I am going to be one of those annoying people who know everything about diet, exercise, alternative therapy's etc haha, I'm using my recovery to look at my life and make all the changes I need to to make sure I'm as healthy as I can be and the transition is as easy as it can be, even if that means soya milk, green tea and flax oil lol. So whatever happens next I'm ready to deal with it, chemo / brachytherapy / radiotherapy...bring it on.

    You look after yourself pet and keep in touch, I'll let you know when I get my results

    Nic xxx

  • Hi Nic,

    How are you recovering. Any News? 

    Im still in healthy eating mode. I have lost 1st 8lbs so far. I'm really working on managing the insulin (apparently this feeds the cancer).

    Christmas was okay. It was a very low key one for me. A glass of Prosecco Christmas Eve, Day and New Years Eve.

    Im interviewing for a 6  month contract. In enjoying the break and being home. It's giving me an opportunity to research so I have lots of questions when I see the Consultant next.

    We're planning a holiday to Tenerife next month so looking forward to that.

    love to know how  your doing 

    Mon x