Sisters with breast cancer

Hi, I'm Sue.  I have recently been diagnosed with breast cancer and on Tuesday I had a lumpectomy and sentinel nodes removed for biopsy, then in a few weeks I'm to start radiotherapy.  It's just 4 weeks since I went to my GP with what I thought was a cyst, and everything has moved so quickly that I'm sitting here looking at the cannula bruises on my arm and wincing at the op sites under my arm and under my breast, and wondering what the heck just happened.  My lump was small and hopefully the sentinel nodes won't show anything untoward, and I am doing my best to maintain a positive attitude for a positive outcome.  And I am trying to ignore the horrendous hot flushes that I've had since coming off the HRT 2 weeks ago which I know will get worse when I go onto hormone therapy.  I live on my own.

I have a sister in the USA, and by a horrible coincidence she too has just been diagnosed with breast cancer.  Unfortunately hers is stage 3, large and deep, and she tells me her treatment will be radical double mastectomy, radiotherapy and chemotherapy (she had a biopsy on Tuesday, as the same time as I was having my lumpectomy).  She also has a verbally abusive husband who has major heart problems and depression and does not give much help, care, or support, and as a result she relies very heavily on me for emotional support.  When we speak on the phone tomorrow she wants to talk about whether to go ahead with the treatment and fight, or whether to go with palliative care and enjoy what time she has left. 

Usually when she wants advice I can give it reasonably objectively, but I can't this time.  One of the problems is that she is a very negative person, narcissistic, and I can't always believe everything she tells me.  She told me she had a lump in one breast so why a double mastectomy?  And I know that stage 3 isn't good, but it does mean that the cancer hasn't metastasized, doesn't it (according to the booklet I've been given)?  So stage 3 isn't necessarily terminal?  Although if left untreated I guess it would be eventually.  Or have I got that wrong? 

I feel so ill-equipped to have the 'fight or give in' discussion because whenever I tell her that something is her decision alone and nobody else can make it for her she tells me that I'm all she has to live for and she will do whatever I say.  But if what I say isn't what she wants to hear she ignores it!  I usually cope by breathing deeply and doing a bit of mindfulness meditation or tai chi, but I am tired and sore after my surgery and not as patient as usual.  Not to mention that I am still steaming at her message to me on Facebook where she said 'I am glad your cancer has gone'.

I know that nobody can tell me what to say to her tomorrow, but I really just needed to let all of that out, sorry! :(

 

  • Hello Sue, 

    Welcome to the forum It sounds like you've had such a lot to cope with in a short time - both for yourself and the news of your sister's diagnosis. 

    From what you've said in your post it sounds as though your sister is a strong willed person who will make her own choices regardless of what others may say to her. I sense that you maybe find it difficult to talk openly with her sometimes. 

    As you've said you still have your own results and treatment to get through and it's important to look after yourself physically and emotionally over the coming weeks and months. It sounds like you have some positive tried and tested techniques for helping to do this (i.e mindfulness, meditation, tai chi). If you feel that it would help to talk to someone about your illness, or your sister's, then we have a team of nurses here at Cancer Research UK that you can call to talk to. They are available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Please do stay in touch Sue. You're welcome here anytime you need to ask a question, offload or just to chat. Let us know when you get your test results back and I hope that you feel less sore from your biopsies soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

  • Hi Jenn Thanks - I do sometimes need reminding that I should look after myself! I must admit I'm giving more thought to how I should be supporting my sister than to what I should be doing for myself. We still haven't had the chat that I have been dreading about what my sister should do - she didn't want to speak on the phone on Friday, just to instant message, she didn't want to communicate at all yesterday and she doesn't want to do so today. I read a post on here from someone who is terminal saying that she just wanted to be left alone and given space when she was making the decision to fight or not so I'm leaving it to my sister to let me know when she does want to talk. But I'm fully expecting to get an earful at some point because I'm not trying to badger her into communicating when she might want me to be doing just that! Thank you for the phone number. I will have to have a look online to see if there is an equivalent organization/charity in the USA who might be able to help/support my sister. This forum is an excellent and valuable resource, thank you! Sue
  • Hello Sue,

    I am glad this forum has been useful to you. And you are right, you do need to look after yourself too! It is very nice of you though to be thinking of your sister. There are definitely some good organizations in the USA who will be able to support her. I have included below a couple of organizations she may be interested in contacting:


    American Cancer Society
    Provides online, email and telephone information for people with cancer in English and Spanish.

    Website: www.cancer.org
    Help line: 1 800 227 2345


    National Cancer Institute
    Coordinates, conducts and supports cancer research. They also provide online, email and telephone information in English and Spanish.

    Website: www.cancer.gov
    Phone: 1 800 422 6237 (Monday to Friday, 8am to 8pm)

    Feel free to pass this information on to your sister.

    As Jenn said, do keep in touch and let us know how things are going for you and for your sister.

    Best wishes,

    Lucie, Cancer Chat Moderator